“Wow, that is a rare lung disease. I have heard of lymphocytic interstitial pneumonia [LIP], but I have never known or treated anyone with this disease. Your case will be interesting.” That’s what my cardiologist said when I went for my first consultation regarding my hospital stay for symptoms of…
When I was growing up, I loved the show “MythBusters.” I tuned in regularly to watch Adam Savage and Jamie Hyneman bust famous myths and answer burning questions like, “Will using a cellphone near a gas pump cause an explosion?” 2003 seemed like a simpler time, didn’t it?…
The days surrounding April 7 each year are emotional for me. On that day in 2016, I was diagnosed with idiopathic pulmonary fibrosis (IPF) at the young age of 28. Like many others, I’d never heard of IPF and knew nothing about this life-threatening and debilitating lung disease. Moreover, as…
The federal transportation mask mandate has been extended through May 3. The city of Philadelphia has reinstated mask requirements in public indoor settings. People in the U.K. are watching the spread of a new recombinant COVID-19 variant. The Chinese government has reportedly implemented either full or partial lockdowns in…
I spent a lot of time crying last week, but for a positive reason. Idiopathic pulmonary fibrosis (IPF), a cruel and life-threatening lung disease I was diagnosed with in 2016, has often been the reason for my tears. It is challenging to live with a condition that causes debilitating…
Every day in my post-transplant world begins with morning doses and ends with evening doses of medication. I also take doses in between, totaling 33–34 pills a day. Medication management is central in the life of a transplant recipient. I received a bilateral lung transplant on this past…
Laughter brings people together. It can lead to positive emotional changes, especially when you’re having a rough day. It can also boost the immune system, which enables our body to fight infections. Laughter can help us feel relaxed and vibrant and make our spirits soar. Chronic illness can trigger…
It was July 9, 2021, at 9 a.m. NBC’s “Today” show was on television in our house that morning. I was in my home office going through my morning routine while my wife, Susan, was downstairs in her home office. When my cellphone rang, I recognized the number as the…
Many chronic illness patients experience brain fog. Those living with idiopathic pulmonary fibrosis (IPF), a progressive and life-threatening lung condition, are no exception. Due to being chronically under-oxygenated, especially as the disease progresses, many IPF patients find their brain fog prohibitive to important aspects of their life, such as excelling…
On Jan. 31, 2017, Dr. Steven Nathan, a pulmonary disease expert, sat on a stool in a clinic room across from my wife, Susan, and me, and confirmed my diagnosis of idiopathic pulmonary fibrosis (IPF). The gravity of my diagnosis hit Susan especially hard, to the point where every…
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