Christie Patient is a life-long explorer of the Wild West. She now resides in the Hawaiian Islands with her husband, Jonny and their two four-legged friends. Christie is a full-time freelancer, nature lover, and business owner. She took a break from work in 2019 to care for her mother, Holly before and after her double-lung transplant. Christie’s column documents the experience of her mother’s IPF progression, months-long hospitalization at UC San Francisco, and life-saving transplant. She hopes that her family’s transplant story can provide a unique perspective for other IPF patients and family members.
For all the time I’ve spent in my 31 years “sitting in the U-bend, thinking about death,” as Moaning Myrtle from the “Harry Potter” series says, facing the loss of a loved one hasn’t gotten any easier. In spite of all my pondering, reading, and writing on the subject of…
Greetings from Griefville. This column comes in three parts. Part 1: Grief is the worst Five years ago, I lost my cousin Charlie to lung cancer. He went to the emergency room with what he thought was pneumonia, and six weeks later, he was gone. It was a cold, dark…
My friend Chase and I sat in my treehouse one sunny afternoon looking across the arid valley between my childhood home and the towering crest of the Sierra Nevada. We were 10. We noticed a plume of smoke rising from the hills, which soon turned into a blaze that destroyed…
It took 26 months, but I finally got COVID-19. In that time, I’ve felt many strong emotions about the pandemic and its effects. Every part of life has been touched by this disease and the wildly varied responses to it, both across the globe and within our interpersonal…
As a millennial, I came of age with the internet. I remember the thrill of choosing the perfect screen name for AOL Instant Messenger before going to camp. (luv4pigs31, if you were wondering.) In eighth grade, I created my first social media account. Back in the early 2000s, Myspace was…
When I was growing up, I loved the show “MythBusters.” I tuned in regularly to watch Adam Savage and Jamie Hyneman bust famous myths and answer burning questions like, “Will using a cellphone near a gas pump cause an explosion?” 2003 seemed like a simpler time, didn’t it?…
Have you ever gotten into the car, started driving, and then snapped out of a trance at your destination with no memory of the trip? Let’s call it driving on autopilot. Relying on your reflexes to operate a vehicle is certainly one way to get from point A…
I have several roles here at Bionews, the parent company that publishes Pulmonary Fibrosis News and other rare disease websites. I started with this humble column and eventually joined the forums team as a co-moderator. My most recently acquired title is “columns lead,” in which I manage and mentor…
The holidays can be a time of joy and celebration, magic and wonder, traditions and new beginnings — but also grief and pain. These things can exist all at once, but it can be hard to admit that you’re feeling heavy when you’re expected to be light and…
The holidays are complicated. And getting in the holiday spirit with a chronic illness, in the dead of winter, in the middle of a pandemic, can be, well, challenging. If you are struggling to feel the magic this season, that’s OK. If you’re too exhausted or too sad to…
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