The Pulmonary Fibrosis Foundation has a list of the all of the medical centers in the U.S. that have the expertise to treat patients with pulmonary fibrosis (PF), along with links to the centers’ websites so they can be contacted easily. The list can be searched by…
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…
Keeping yourself healthy can feel impossible sometimes, especially if you have pulmonary fibrosis (PF). However, the Pulmonary Fibrosis Foundation suggests a few lifestyle changes that can improve your quality of life. 1. Exercise You may feel tempted to exercise as little as possible to avoid feeling short of breath or…
We tend to take our lungs for granted, that is until we develop breathing difficulties. But even when living with a chronic lung disease, it is even more important to look after these vital organs as best we can. The Rush University Medical Center has some…
Life can be extremely difficult when you’re coping with a chronic lung disease like pulmonary fibrosis (PF). As well as dealing with the physical effects of the disease, you also have to cope with the emotional fallout that comes with living with PF. MORE: The realities of a pulmonary fibrosis…
The Pulmonary Fibrosis Foundation has teamed up with ProPatient to launch an online resource for idiopathic pulmonary fibrosis (IPF) patients and their caregivers. The program called Partnering with Your Doctor provides educational information for anyone living with the disease or wanting to find out more about IPF.
For some chronic lung disease patients, their lung function declines so much that they need to have a lung transplant. However, it’s a complicated procedure and recovery can be slow. To ensure you have the healthiest recovery possible, you’ll need to adhere to a few basic rules, according to the…
If you are active on social media and have a chronic illness, you’ve probably come across the term “spoonie.” The word comes from a woman’s explanation of how she has to manage her energy levels each day.  As she was in a cafe at the time, she grabbed a bunch of spoons…
Idiopathic pulmonary fibrosis (IPF) can be a challenging disease for a care provider. To help provide support for IPF caregivers, Pulmonary Fibrosis MD has some useful resources. MORE: Pulmonary fibrosis caregivers encouraged to ‘take a breather’ 1. National Caregivers Library This site provides information…
In this video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis, Professor Vincent Cottin and Professor Luca Richeldi discuss which biomarkers are reliable for the diagnosis of idiopathic pulmonary fibrosis (IPF) and can predict the disease’s progression. MORE: Sputum analysis could be an alternative…
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