This video from Adam Karm titled “The Best Mom in the World” is all about the Packer family. Thirty-three-year-old Stephanie Packer was diagnosed with diffuse scleroderma in 2012 and now, as a result, suffers from pulmonary fibrosis. Wondering how you can better manage you pulmonary fibrosis?…
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Diagnosing pulmonary fibrosis (PF) is complicated. Symptoms can mirror those of other lung disorders like asthma, pulmonary hypertension or chronic obstruction pulmonary disease (COPD). Because of this, six different diagnostic tools are needed for an accurate diagnosis of PF, according to the American Lung Association. 1. Chest x-ray…
In this video from Barnes-Jewish Hospital shared in April 2013, we meet Randy Cooke, a 50-year-old pulmonary fibrosis patient who underwent a double lung transplant. Find out what to expect after a lung transplant. Randy wasn’t surprised when he received his pulmonary fibrosis diagnosis–it was the…
**This video contains adult language** In this video, weightlifter Tom and his three friends Will, Sam, and Craig, share that they have challenged themselves to eat 100 chicken nuggets. Sounds simple, right? Not quite. They’ll also be performing 100 squats holding 120-kilogram weights, while trying to consume this 4,300-calorie chicken-and-ketchup feast.
In this video shared by the Pulmonary Fibrosis Foundation, we see a webinar filmed at the PFF Summit: From Bench to Bedside held in Washington D.C. in November 2015. Meet some PH patients and find out what it’s like living with the disease. Dr. Sonye K. Danoff…
In this animated video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis, the body’s need for a constant supply of oxygen is explained and how oxygen therapy works for pulmonary fibrosis patients. Find out more about how oxygen therapy is used in treating pulmonary fibrosis. The film describes how…
https://vimeo.com/162782590 In this photograph montage from Jason T. Beck called Celebrating Ricky Miller, we get a glimpse of the life of Ricky from Akron, Ohio, who battled idiopathic pulmonary fibrosis, a chronic condition that causes scarring in the lung tissue. Find out why we shouldn’t stop raising…
Did you know that pulmonary fibrosis takes as many lives as breast cancer or prostate cancer? However, unlike breast and prostate cancer, there is no remission and treatment can only ease the symptoms. Around 40,000 people die each year from pulmonary fibrosis in the U.S. yet very few people…
This film from Focus Patient describes the rare chronic lung disease idiopathic pulmonary fibrosis (IPF) for patients who have been recently diagnosed. Dr. Toby Maher talks about how doctors discuss idiopathic pulmonary fibrosis with their newly diagnosed patients. The educational film goes into detail about how the lungs work…
Exercise is crucial for people with pulmonary fibrosis to help slow down the decline of lung function and to maintain overall health, but over the holidays it can be difficult to find the time. With this in mind, we’ve put together a list of tips to help you find time to…
