https://www.youtube.com/watch?v=axuIDgf1hkE Pulmonary fibrosis (PF) is a respiratory disease characterized by the formation of scarred tissue in the lungs, specifically in the air sacs known as alveoli. However, being a rare disease that affects about five million people throughout the world, pulmonary fibrosis is often away from the spotlight, which leads to…
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What is idiopathic pulmonary fibrosis (IPF)? IPF is a rare lung disease in which tissue deep in your lungs becomes thick and stiff, or scarred, over time. This scarring of the lung tissue causes IPF patients to experience severe difficulties in breathing among other serious symptoms. In this animated…
The Pulmonary Fibrosis Foundation (PFF) is a 501(c)(3) nonprofit organization focused on fighting pulmonary fibrosis (PF). But how did it all start? The brothers Albert Rose and Michael Rosenzweigh, PhD, watched their sister suffer from the rare lung condition, and they ended up being diagnosed with it as well,…
https://vimeo.com/169933079 Pulmonary fibrosis is a disease in which tissue deep in your lungs becomes thick and stiff, or scarred, over time. Most of the time, the cause of how it develops is unknown and in those cases, it’s called idiopathic (unknown cause) pulmonary fibrosis. In this video, shared by Institute of…
1. Aoife Clancy Musician Aoife Clancy was famous for being a member of the band Cherish the Ladies. On September 6th, 2002, she lost her father to pulmonary fibrosis after a three-year struggle with the disease. Aoife and Bobby Clancy had a close relationship as he was the one that…
There are many shared risk factors for the development of the lung diseases pulmonary fibrosis (PF) and chronic obstructive pulmonary disease (COPD), but researchers of the two chronic conditions usually focus on understanding each disease separately. New research has found evidence that there may be a common genetic predisposition for the development of…
1. Bill Bright William R. Bright, best known as Bill Bright, is the co-founder of the largest Christian ministry in the world, the Campus Crusade for Christ. In 2003, he died from complications related to pulmonary fibrosis, as announced on his website. 2. Boyd Bennett The…
In this video from schoolofmedicine, meet Hamish S. Osborne and Christine C. Osborne. Mr. Osborne was diagnosed with IPF and had go to through surgery for a double-lung transplant. After that procedure, the couple became parte of the founding supporters of the Program in Lung Healing.
PFF Care Center Network is a group of medical centers which dedicate their work to improving the lives of those living with pulmonary fibrosis. According to the Pulmonary Fibrosis Foundation, these kinds of centers are expanding and keep growing. Their main purpose is to treat patients with fibrotic lung…
Meet Larry Rawdon. He’s a two-time Mayo Clinic lung transplant recipient and in this video you can see him sharing the power of music in his harmonica class. In this video, shared by Mayo Clinic in 2013, Rawdon shares his passion for the harmonica and…
