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IPF and Bronchiectasis
My recent CT showed mild bilateral bronchiectasis. I”ve had a large increase in muceus and really violent coughing which is almost continuous and very debilitating. I have tried mucinex, robitussin, delsym and RX bensonate as well as azithromycin with absolutely no effect. My IPF is under control with deuperfinadone and has had only slight progression. I would appreciate any comments from those who have had a similar experience.
Chuck
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5 Replies
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I recently developed traction bronchiectasis as an unfortunate complication of my IPF. The traction bronchiectasis was accompanied by increased mucus production, causing a decrease in DLCO. Pulmonary rehabilitation has been helpful with providing instructions regarding the proper way of using mucus clearance devices, like a nebulizer with hypersaline or albuterol & the use of a spirometer like the Aerobika device. It is encouraging that deupirfenidone (lyt-100) has slowed progression of your IPF & does not result in the debilitating side effects of Ofev & Esbriet. When will the clinical trial be over?
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Since I posted, my pulmonologist prescribed hydrocodone and it literally stopped the cough almost immediately. The trial is still active, but I have completed my part of the blind study. It turns out I had deuperfinidone all along and am continuing with it. I had some issues with nausea but seem to have gotten over that.
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8 years ago, I started having serious mucus problems and did some research about Serrapeptase, it was initially used to reduce scar tissue in the liver for a long time. Tried it then still use it now BUT a very serious warning it is measured in SU and I take about 500000 su in the evening before sleep (4 pills) – the warning is NEVER take it anywhere close to other pills – it dissolves them faster and that’s not good, never take with food. Serrfapeptase dissolves protein, which it sees as pills and food as in general.
If you can find a version that delays dissolving, that will allow it to reach your gut more, instead of stomach acid dissolving it with less effect.
Stay well…
Steve -
Thanks Steve. I will be researching it.
Chuck
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