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OFEV and Carob powder
I was diagnosed with IPF in June 2022 and decided to start OFEV a year later because for me it was a better fit than esbriet. Since then I have wrestled, like most of you, with bouts of diarrhea, worsening the longer I was on the drug. I have tried different dosages and even took almost a year off the drug because of GI problems.
In July of this year, I started on a daily dosage of 300mgs and adjusted that to 200mgs, then recently to 250, 100 in the morning and 150 in the evening.
About a month ago, my case worker did her routine phone check at which rime I advised her I was still having gut issues. She advised that several of her patients have been having success with Carob powder. It is from a tree in the Mediterranean area , has a look and taste similar to cocoa powder and can be easily purchased on Amazon.
Dosage is one tablespoon mixed with a few ounces of water and taken with the OFEV. It dissolves easily in water after a good stir.
I immediately ordered a pack at approximately $10 CAD, received it the next day and started taking it immediately. I haven’t looked back and ordered 6 more packs (Amazon bulk deal). I have been taking it since January 23 and haven’t had one bout of diarrhea. First time since starting OFEV that I have been comfortable and not running to the john or afraid to go out. It does darken your stool and makes it somewhat tarry but that’s an easy trade off.
I hope this will help others who are experiencing gut problems with OFEV.
Cheers
Keith
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