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Hi Mark,
My pulmonary fibrosis (PF) is still relative mild, as measured by pulmonary function tests (PFT). And I have significantly improved my PFT results after starting daily cardio exercise in pulmonary rehab. Also shortly after finishing pulmonary rehab, I read the book “Breath” by James Nestor where different breathing methods are thoroughly discussed. I can’t say for certain, but I believe that both cardio exercise and breathing technique have improved my PFT’s and my well-being. The best thing I ever did was start pulmonary rehab early and I am extremely grateful to the physician’s assistant who wrote the order!
I tried pursed-lip breathing during rehab. It is simple enough to do while exercising and consciously making an effort. But I didn’t really feel any benefit. And it is not something I can do without making a conscious effort, such as when I’m laying in bed falling asleep. I exercise and sleep with oxygen where nose breathing is essential. To inhale through the nose and exhale from the mouth requires mental effort. If I’m sick, congested, or coughing I simply can’t make the pursed-lip breathing effort.
I now practice Buteko-style breathing during exercise, but also throughout the day. (Also, I’m now a 100% nose-breather – even when congested.) I make an effort to take slow-deliberate breaths with prolonged pauses between inhale, exhale, inhale, etc. I try to make the most of every breath.
Now to be technical for a moment: PF is a “restrictive” lung disease while COPD, bronchiechtasis, etc. are “obstructive” diseases. The difference is extremely significant. What is good for one, may not be for the other. Buteko Breathing Method has been shown to be beneficial for obstructive lung disease. I’m not aware that any study has shown benefits for restrictive diseases. Your mileage my vary.
– jon