Biography

Name

Jonathan
Nickname

jonathan-poland
Last Name

Poland
Location

St. Louis, Missouri, USA
Relationship

Patient
Short Bio

I am married (35+ years) with 2 adult children.  I am an engineer and professional computer geek who chooses to continue working in spite of being retirement age.  I am also a US Navy submarine veteran who spent a lot of time underwater and in a shipyard (this may have exacerbated my disease).  Consequently, I am a 100% disabled veteran.
Type of Diagnosis

PF of known aetiology
Treatment / Medical Facility

O2 (2 lpm) @ night & w/ exercise / Ofev 150mg twice daily / VA
Current medication regimen

Ofev 150mg BID
Lung transplantation status

to be determined
Supplemental Oxygen

yes
Best advice for PF symptom management

1) Go to pulmonary rehab!  Now.  It has significantly improved my overall health and (I hope) my ability to withstand future health crises.

2) Follow your doctor’s and pulmonary therapist’s instructions to the letter
Are you currently taking an anti-fibrotic medication?

yes
If yes, which anti-fibrotic medication are you on?

Ofev
How did you find us?

Other
How long have you or the person that you are caring for had PF?

symptoms since 2016, diagnosis in 2019
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