Jonathan Poland

Name

Jonathan Poland

Location

St. Louis, Missouri, USA

Relationship

Patient

Short Bio

I am married (35+ years) with 2 adult children.  I am an engineer and professional computer geek who chooses to continue working in spite of being retirement age.  I am also a US Navy submarine veteran who spent a lot of time underwater and in a shipyard (this may have exacerbated my disease).

Type of Diagnosis

IPF

Treatment / Medical Facility

O2 (2 lpm) @ night & w/ exercise / no drugs / Barnes Hospital of St. Louis, MO

Current medication regimen

none

Lung transplantation status

to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

1) Go to pulmonary rehab!  Now.  It has significantly improved my overall health and (I hope) my ability to withstand future health cricis.

2) Follow your doctor’s and pulmonary therapist’s instructions to the letter

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

symptoms since 2016, diagnosis in 2019

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