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OFEV
Hi. I was diagnosed with IPF in mid 2024 after two courses of chemo treatment. Remission was thankfully the result.
I would appreciate any advice from members about what I understand is a symptom – cold feet! I have received advice but it wasn’t conclusive enough for me.
I had cold feet before being officially diagnosed. I have been on OFEV and have had a number of the usual reactions to that.
1. Do you have cold feet? – please describe what you have been told about the matter.
2. Have you been told that the condition stays with you, gets worse, stays the same?
Anything you can advise will help me.
Best wishes and thanks for your support
Regards
Warren
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1 Reply
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If you have IPF, your body oxygen will be low (mine never goes above 96%) this means that you cannot generate as much heat as those with normal oxygen – thus you will be cold.
Martin
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