• Questions Re OFEV

    Posted by Aly on September 27, 2025 at 12:40 am

    I was diagnosed with IPF in January after being hospitalized with bilateral pneumonia. After further testing and poor o2 sats I was home on O2 and started on Esbriet. I was switched to OFEV at the end of July because of side effects. I am on 150of Ofev 2x a day but this isn’t much better and I . am having terrible GI side effects. I am trying to watch my diet and eat high protien. I had another pneumonia in March . I am doing pulmonary Rehab and my oxygen needs have improved. My Sats are maintaining in the 90’s on Room air. I am not a transplant candidate at 75Years old. I”m just looking for people to share with who understand and share thoughts and ideas. Does this Haritaki have side effects does anyone knowThanks Linda

    kitt replied 2 weeks, 5 days ago 2 Members · 1 Reply
  • 1 Reply
  • kitt

    Member
    September 30, 2025 at 2:52 pm

    I have had a similar situation. First, when they say to take it with protein they really mean 30 or 40 grams of protein each time. I did make a dent in my side effects on the GI side when I increased the protein, but I had a bad hep panel, unrelated to the protein; it is a known side effect. Because I was traveling we cut back to one dose a day, but I continued the high amount of protein 3 times a day. Frankly, my side effects have almost disappeared, maybe small problems 2-3 times a month. I also take a daily probiotic and one Imodium. I traveled 90 days, spread out and did not have to cancel a single tour or excursion. It was a great success .

    Now that I am home for two months I am trying the 100 mg dose twice a day and so far no side effect problems. After a month we will redo the HEP panel to make sure the liver can handle this dose.

    By the way, my doctor says the side effect profile for the new drug, trade name Fibroneer, appears to be at least a 40% reduction of side effects.

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