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    • #23645
      Joe
      Participant

      why can’t ipf patients use the med they want to try for coronavirus

    • #23701
      Ross Harris
      Participant

      There are only two drugs approved for the treatment of IPF in the United States. One is Esbriet (pirfenidone) and the other is OFEV (nintedanib). Esbriet requires a dosage escalation over a couple of weeks before settling down to three doses a day. OFEV is two doses daily at the same time each day. Both drugs are very expensive. You might ask your doctor why he prescribes one drug over the other.

    • #23708

      @joeyf36

      Hi Joe,

      This is a good question, although I don’t believe there are any drugs available test to test the effectiveness of ‘curing’ / stoping COVID-19.  I don’t believe, but I could be wrong. Likely PF patient’s can’t try it because of possible drug interactions with our anti-fibrotics, which Ross listed above (thank you @cimarronkid ) or we have another dangerous co-morbidity/disease that could alter the effectiveness of the drug in those who are healthy. These are all just guesses of course, but I suspect they will be wanting to test it in the most optimal population, which are those who are healthy. Hope you’re keeping as well as possible.

      Charlene.

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