• Weight Loss Thoughts

    Posted by Richard on October 17, 2025 at 4:08 pm

    I am about 7 1/2 years into IPF and experiencing the typical decline in my health. Experienced a slow but steady loss of weight over this time period. About 175 Lbs to a low of 123 Lbs. Had an exacerbation in August 2023 and Hospital started me on Prednisone that was a big help. Couldn’t stop taking Prenisone and stayed on 20 mg going forward. My weight stayed pretty stable and after about a year started to gain weight to about 140 Lbs. Reduced Prednisone to 10 Mg per day (months ago) and now back to 123 Lbs. Increasing Prenisone to 15 Mg for now.

    Some conventional wisdom says that Prednisone is not an effective treatment for IPF, but I am definately an exception.

    What I have wondered about is what my blood cortisol was before starting Prednisone? I would suggest that anyone losing weight with IPF have a blood test for your cortisol level before taking prednisone.

    Doubt if it’s a record but I’m 86 years old. 😀

    Best to everyone out there.

    Richard

    Richard replied 2 days, 21 hours ago 1 Member · 0 Replies
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