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Amy

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@aihnow

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    Amy replied to the topic Healing scar tissue zoom call recording in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 4 weeks ago

    Please send me the link. Thank you.

    • Profile picture of Christie Patient
      Christie Patient replied 4 months, 4 weeks ago

      https://www.dropbox.com/s/dazck2mnjxy30fb/video1067307982.mp4?dl=0

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    Amy replied to the topic New Treatment in Phase 3 looks like it might be promising in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months ago

    I saw it too. There’s not much out yet. Will ask at my next appointment at Inova Fairfax.

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    Amy replied to the topic Looking for a Liquid Oxygen Solution in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 5 months, 3 weeks ago

    That’s the Holy Grail. It’s not available outside of medical facilities. If it were, every single one of us would have it. 😞

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    Amy replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 2 weeks ago

    Lol my phone sent you a hug. I’m asking for specifics.

  • Profile picture of Amy

    Amy replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 2 weeks ago

    Please sending you a hug the specifics. Is this really going to be on Thanksgiving?

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    Amy replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 7 months, 1 week ago

    Yes. I tied that for the same reason, but I could not handle the GI issues that persisted. I went back to 100 twice a day. Doing well now.

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    Amy replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 3 weeks ago

    I’m interested

  • Profile picture of Amy

    Amy replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 9 months, 1 week ago

    Yes, I tried to split dosages – valiantly! I was unable to tolerate the extra 50mg no matter how I did it. It was worth trying simply because a higher dose would conceivably be most effective. I’m finally back on 100mg twice daily. Try it. The FDA, in its infinite wisdom, means well but patients and doctors are living this. The same FDA has been h…[Read more]

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    Amy and Profile picture of Phyllis Della-LattaPhyllis Della-Latta are now friends 1 year, 5 months ago

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    Amy posted a new activity comment 1 year, 5 months ago

    Thank you No thanks needed. My body had me drafted!

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    Amy became a registered member 1 year, 5 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 5 months ago

      Welcome to the PF forums Amy, thanks for joining us!

      • Profile picture of Amy
        Amy replied 1 year, 5 months ago

        Thank you No thanks needed. My body had me drafted!

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