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Dave Sabatelli replied to the topic Can’t do PFT in the forum Diagnosis Information and General Questions 5 months, 3 weeks ago
A CAT scan will show the level of fibrosis.
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Dave Sabatelli replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 4 months ago
The results of my recent 6 min walk test indicated that I qualify for supplemental oxygen during exertion. I now have a OxyGo Next oxygen concentrator. I am very active so I’m trying to adapt portable oxygen in my daily life. I also believe that I should try to keep my oxygen level as closes as possible to that of a normal person (94 -97). Unf…[Read more]
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Allan Byron and
Dave Sabatelli are now friends 2 years, 7 months ago
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Dave Sabatelli replied to the topic How does taking Prednisone help IPF patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 7 months ago
I have IPF two weeks ago my Dr prescribed 2 20mg prednisone/day for 7 days. I believe the steroid burst help my daily activities Dr says it can be repeated when necessary. The steroid did increase my morning BG number but they returned to normal as soon as I stopped taking them.
dave
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Dave Sabatelli started the topic How does taking Prednisone help IPF patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 7 months ago
As I read thru IPF articles I find many patients are prescribed Prednisone by their pulmonologist. What are the benefits of taking Prednisone?
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Dave Sabatelli started the topic Possible target found for idiopathic pulmonary fibrosis treatment in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 1 month ago
Yes pass this on. My pulmonologist said “As far as I know this has only been demonstrated in mice. No human studies have replicated this, and as such no actual medication exists that is FDA approved for use in IPF.” My next visit is June 2 I will dig a little deeper with him.
Thanks for your help
dave
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Dave Sabatelli started the topic Possible target found for idiopathic pulmonary fibrosis treatment in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 1 month ago
<p class=”MsoNormal”>I received the link to this article from one of my FB IPF groups.<span style=”mso-spacerun: yes;”> </span>This is the first article I have seen that says this can “reverse idiopathic pulmonary fibrosis”.<span style=”mso-spacerun: yes;”> </span>I’m curious what everyone’s thoughts are?</p>
<p class=”MsoNormal”>A new study has…[Read more] -
Dave Sabatelli replied to the topic An Interview With a Pulmonologist in the forum Diagnosis Information and General Questions 3 years, 2 months ago
Thank you good interview, I am sharing with my family. I am approaching my one year anniversary of being diagnosed with IPF also one year on Esbriet. I need to learn everything I can about IPF .
Thanks
Dave
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Dave Sabatelli replied to the topic Commonly Prescribed Medication For Cholesterol May Benefit IPF Patients in the forum Flash Briefings & Podcasts 3 years, 3 months ago
Thanks Charlene for the research paper. I read some of it but I’m a “gear head” so I let my daughter Angie (medical technologist) read it. Her reply “The section on page 12 states the results indicate that statins were able to attenuate established lung fibrosis in the mouse. Attenuate means to lessen the amount or reduce”. Looks like the resea…[Read more]
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Dave Sabatelli replied to the topic Commonly Prescribed Medication For Cholesterol May Benefit IPF Patients in the forum Flash Briefings & Podcasts 3 years, 4 months ago
<p class=”MsoNormal”><span style=”font-size: 7.5pt; line-height: 115%; font-family: Georgia, serif; background-image: initial; background-position: initial; background-size: initial; background-repeat: initial; background-attachment: initial; background-origin: initial; background-clip: initial;”>Hi Charlene this is very interesting I take…[Read more]
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Dave Sabatelli replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 5 months ago
<p class=”MsoNormal”>Just sent to Apple feedback “I have IPF and knowing my blood oxygen level is very important me.Is this a feature Apple is considering for the Apple watch?”</p>
Thanksdave
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Dave Sabatelli replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 3 years, 6 months ago
Two days after my open lung biopsy May 13 2019 my Dr confirmed I have IPF. He said there were two drugs available to slow down the progression of this disease Esbriet and Ofev. He explained the side effects of both and recommended I take Esbriet. The main reason, I am very active and with Ofev you need to know where the bathrooms are located. It…[Read more]
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Dave Sabatelli became a registered member 3 years, 11 months ago
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Dave Sabatelli changed their profile picture 3 years, 11 months ago