Forum Replies Created

  • James Williamson

    Member
    February 7, 2023 at 2:52 pm in reply to: Cost of Ofev

    Phil and Deb,

    About one year after I was diagnosed with IPF, I was offered free OFEV from Boehringer Inglehelm.   I used it for about six weeks but the side effects were super bad for me.

    My lower gut was angry with constant pain.   I had to remain within 20 feet of a bathroom at all times.   Even at 20 feet, sometimes I didn’t make it.  Driving to the a store or going to a movie was not possible.   I thought I gave it a fair try but my quality of life was hanging around zero.   It’s good some people can tolerate it