Hi Mark and John. Sometimes when I write I may not be very clear, and I think I haven´t written about my whole story. I was diagnosed in 2018, after having HDCT and a cryobiopsy. I almost didn´t notice the intervention. I was anesthetized by noon, and woke up about three hours later. They wanted me to stay overnight so next day I went home. Almost didn´t feel any pain or inconvenience.
Now I am doing a number of tests to see if I can be eligible for a lung transplant.
Hi Charlene Marshall, I just wondered if you had a biopsy. I had and it was after that i got my diagnosis. I thin that if they can clearly see that it is IPF from de CT, they may not need a biopsy, otherwise they will take one.
I have another question, and that is if there are any natural products that could be useful in making life a bit easier with IPF. Like the EGCG, and how one should take it, dosage.
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