Bill Mattila

Hi @bill-mattila, so sorry to hear this! Are you keeping track of your 02 sats when you’re feeling this way? It might help a bit to bring to the doctor’s next month, if you have a bit of a log. Just a piece of advice that was really helpful when shared with me. Keep us posted, and hang in there.
Charlene.

Hello Bill, during my experience with OFEV I found it beneficial if I ate a banana before taking my medicine. I also ate a protein when taking my meds. I had to lose weight so I ate 5-6 times a day. I considered these meals my mini-meals. I had a gastric episode probably once a month. I did take my meds at the same time every day as you have…[Read more]

I have found a new role since my diagnosis @bill-mattila, I agree. I never thought that my diagnosis of IPF nearly three years ago would open this door of opportunity for me, but I am so thankful it has as I’ve met so many wonderful people. I wish it wasn’t IPF that brings us all together, but I am so thankful for the members on this site, who…[Read more]

Wow, really interesting Bill, thank you so much for sharing. I am curious if anyone else on the forums uses this method to help reduce the cough? Glad it is helping you and it isn’t too difficult to maintain. That is excellent! Your pulmonologist recommended it, or was it your GP, Bill? Thanks for answering my million questions 🙂

Enjoy your…[Read more]

Hi, I cough up a lot of phlegm every day, and go through lots of Kleenex! Mucinex 12 hr release is what my doctor recommended and it seems to help a little. I have chronic sinusitis and bronchitis, so I’m also on Flonase, Singulair and saline rinses. My two cats like to sleep with me, so sometimes I take Benadryl before going to bed. I just…[Read more]

Hi @bill-mattila,

Thank you for your reply. I appreciated your Vest and Mucinex comments.

WOW! You say you have had IPF for almost twenty years! I guess from what they say about IPF on the internet, you have really exceeded the life expectancy of three to five years by quite a bit. They do say that everyone if is different though! I was…[Read more]

Hi @bill-mattila, thanks so much for your update and good questions!
When you mentioned you asked your doctor about antibiotics, did you do this as a proactive measure, just to have on hand in case you needed them, or were you feeling unwell at the time? I am a firm believer in not taking antibiotics unless I really need them, just because of what…[Read more]