• Bill Mattila posted an update 3 years, 2 months ago

    @raymond-c-king yes Ray you probably can’t use the vest. Cause it does vibrate stomach too. It was prescribed by the doctor. Try the mucinex. Don’t take too much. I used to live on it before I was diagnosed with the IPF. I take the cheap stuff. Just Kirkland from Amazon 400mg quick release. One Ihave had the IPF for almost twenty yrs. two take one day at a time.

    • Hi, I cough up a lot of phlegm every day, and go through lots of Kleenex! Mucinex 12 hr release is what my doctor recommended and it seems to help a little. I have chronic sinusitis and bronchitis, so I’m also on Flonase, Singulair and saline rinses. My two cats like to sleep with me, so sometimes I take Benadryl before going to bed. I just started using CBD oil, but haven’t seen any change in how much phlegm I’m coughing up yet. Good night! Laura Bush

    • Hi @bill-mattila,

      Thank you for your reply. I appreciated your Vest and Mucinex comments.

      WOW! You say you have had IPF for almost twenty years! I guess from what they say about IPF on the internet, you have really exceeded the life expectancy of three to five years by quite a bit. They do say that everyone if is different though! I was only actually diagnosed having IPF about two years ago but the Pomologist said he saw it on some of my old chest x-rays back as far as 2010.

      Are you also on oxygen? If so, how long have you been using it? So far, my O2 level has been in the 93-96 range most of the time, so I don’t need it yet. I hope that stays that that way for a while. I very seldom ever drop down to the 88-90 level.

      Yes, I was afraid after looking at pictures about the vest, that I probably wasn’t going to be able to use it due to it also vibrating the stomach and my J-Tube feeding tube area.

      I did have a few of the Day/Night Mucinex from a long time ago and I tried it. The box said it expired in late 2017 but I took it and it did seem to work, at least in the day time. At night, it seemed to work for a couple of hours but seemed to cause some acid reflux. I swallowed the pills rather than putting in my J-Tube as they are capsules filled with the Mucinex liquid and are hard to cut open. I guess I could have made a small hole in them and extracted the liquid with a syringe but that is a hard procedure because the capsule shell is very hard. I probably wouldn’t have had the reflux problem if I could have taken them with food but I am not to eat anything for at least 4 hours before bedtime. I could purchase the 12-hour Mucinex but they are quite expensive. I also see they are a slow-to-release capsule and they state, “Do not crush” so I wouldn’t be able to take them in my J-Tube. Also, some of the negative comments on them say they caused acid reflux problems.

      I see my regular Health Care Provider doctor on Monday and I will see if he can prescribe Mucinex for me and maybe my Insurance will cover them. I have found out though, with some over-the-counter items, the insurance co-pay is the same price as the drug store retail. I guess I could purchase the cheaper Kirkland brand but a lot of reports on them is they cause acid reflux and are hard to swallow. I also have a sluggish esophagus. I really had a hard time taking the Mucinex that I took. They were quite large and I had to use a lot of water to get them to go down.

      Well, I have talked for a long time. I wish you luck on your endeavors with this rough disease. Good luck and thanks again for your advice.

      Ray King

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