Make sure that it’s not an attack of the lungs. It’s hard to tell. That’s where the predisone steroids helps.musinex me too.

Med line soft cannula works for me good luck 4ft.

We come and we go. The same for all are equal. Now with lives lived we got in to bad habits. I quit

Them all. But to look back I can’t change a thing and wait for my higher power good luck and god

Speed.

Is important that you make sure that the exacerbation is stopped.
It can go on and on as much as 6 mo.As that was I had read about
This disease. Go hospital if you have to. That what I read about this. Good luck WJM

It helped me to carry the portable isn’t hard. If you want to breathe what’s the deal is. I had to talk myself into it. It’s
Crazy your life in a machine. Think about it you need air right.

I am replying to my oxygen needs going up. You need to keep your needs even not letting your oxygen levels decline. I have read there is three levels in your body that need a certain level to maintain your body. Organs skin and whole body need proper oxidation. I hated to wear the cannala. But how can you live with low levels of oxygen ,cause… Read more

This is all true, but everyone is defensive about their Disability to move like they used too. You have to accept the reality of it👀. I have to think about all the rest of my problems Catheter and all no breathe. I have had problems for 15+ years and still alive and almost 80. So I like to Whine about the Doctor that did a shxxxxd job on… Read more

OFEV does cause bleeding ,so I stopped a number of times for procedures and too many side effects. Don’t fear a short stoppage.

Also see Doctor and and ask him or her.

 

Bernard I’m sorry that they do that. I guess money is more important, we get Charged 11 thousand US dollars a month. My insurance is good so I only pay a low copay. I too suffer from side effects that most people do even the gas and bloating. I have had exrabations a few times it isn’t nice. I’ve had the IPF for at least 15yrs or so and I… Read more

I have fits with my mucus. I do Mucinex  everyday at least the maximum (2400mg a day) so it’s a bear to regulate. I also have a vibrating vest that works. But you have to do it at least 1hr a day or more. I have had IPF for a long time, but didn’t do anything about it. I didn’t know I had it. So I went to lung man and got the news but now I’m… Read more

I had to kinda of remind my Doctor that I was short of O2 on working. He wrote a 2liter constant flow so now I haul a 22lb machine around with me. They said that the small machines won’t work on constant flow and where only on demand which was a lie.

They will do that and up to 5liter. Now I’m stuck with boat anchor.
Now should I spend 2000$… Read more

Dear suffering OFEV users. I have been on OFEV for 2.5 years. First year no side effects.

Now I have them all right down to the rash. Elevated alt and my thyroid test is messed up a little. I take 15omg twice a day I have diarrhea and sickness too. I skip a dose to reset my tract. Will be calling Doctor about my rash and other meds cause… Read more

I handle my excess with a vibrating vest. And mucinex works for me. I mentioned to the lung man and he agreed but don’t take too long.

Do not take Ofev with stool softeners. HA HA.

After a year of OFEV It has slowed the progress of the fiberosis a lot. It now costs 109 thousand a year. 9100.00 a month.

Thank GOD that my insurance co pay is only 42$ a month.

My acid reflux had a lot to do with my lung condition. Causing lots of inflamation.