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Does anyone get relief from breathlessness
Hello all. I had a major exacerbation 9 weeks ago and my breathlessness has become severe and is progressing each day even at rest. It feels I can only breathe in a tiny bit of air. It’s dreadful. I just wondered, of those of you, bless you, who have very severe breathlessness, do you ever get days or periods where you can breathe easier? It’s so much of a struggle.
Advice would be appreciated greatly. Kind regards, Gavin. -
5 Replies
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Your oxygen requirements may have changed after the exacerbation. You should try turning up your oxygen and see if there is a point where it helps the breathlessness.
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My mother developed atrial fibrillation which resulted in additional breathlessness despite her oximeter readings showing adequate oxygen levels. If your O2 readings are ok and the breathlessness is unexplained, prompt evaluation would be a good idea to check for other causes or contributing factors…best wishes!
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Hi I have had two exacerbation and with each my O2 level has increased. I’m now at 6 or 7. Talk to you pulmonologist and cardiologist. U need to be evaluated. I also had pneumonia with each exacerbation and things got worse. Also I can’t remember exactly but my pulmonologist explained that my carbon monoxide can’t be exhaled which causes difficulty with breathing Good luck and God bless. I lost my sis to PF. It’s a horrible disease. 🙏🏻🙏🏻
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Gavin, I have been through severe situations with pulmonary fibrosis. I wrote a book that was recently published on Amazon called A Matter of Life and Breath about my journey.
There are some specific exercises I followed for breathlessness and oxygen anxiety. I have also found excellent relief using the Buteyko breathing method. Patrick McKeown writ a book call The Oxygen Advantage that describes methods for calming breathing exacerbations. He also has several youtube videos. You may contact me by email and we can set a time to talk by phone anytime. [email protected]
All the best to you,
Lee Fogle -
Is important that you make sure that the exacerbation is stopped.
It can go on and on as much as 6 mo.As that was I had read about
This disease. Go hospital if you have to. That what I read about this. Good luck WJM
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