Gavin John Powers

I don’t understand the spirometry results but the consultant told me the results (in September 22) were I had 20% lung capacity. He kind of ignored it. Said “it’s very low, but going on how you’re presenting I’m not concerned and I can’t see fibrosis on your CT scan”. Although they saw two Bronchiectasis close together, they said were tiny. Ev…[Read more]

Hi Scott. That would be very useful. My number is 07772044038. I’m in the UK. So if abroad you could WhatsApp me?
I’m supposed to be having a 24 hour sats monitor device but that is taking forever and I’m fearful I’m not going to be able to wait much longer.
My breathing is so bad.
kind regards,

Gavin

Thank you Silvain and GiGi.
I’ve tried a hand held fan and it doesn’t seem to help me unfortunately.
Yes, I too think I need oxygen. And my sister (a nurse) thinks c-pap or bipap too because my involuntary breathing doesn’t seem to work. As soon as I stop concentrating on taking breaths, my oxygen sats plummet, so falling asleep is really frigh…[Read more]

Thank you Monica. I hope your journey is comfortable as possible.
I’m getting worse as each day passes. My chest and back is aching and my legs are weak. My sats drop to 89 now unless I’m forcefully breathing. If I stand up or walk my pulse shoots to 140. It’s unbearable. I just wish I could find someone to help. xx

I’ve ordered some haritaki online. I’m dearly hoping it makes some kind of difference before it’s too late.

Thanks Scott,
I have a finger pulse oxometer and an Apple Watch. The pulse ox was calibrated by a paramedic on a 999 call a few months ago so I know it’s accurate. The main problem is that I am getting no sleep at all – every single time I start to nod off I stop breathing and wake up. I’m getting blocks of about an hour where I’m awake aslee…[Read more]

Thank you Charlene,

The symptoms are there permanently and worsening. It actually feels like this last three weeks the structure of my lungs feel different like they’re being pulled apart. I’ve even heard a crunching type noise on some breaths in.  And this thing with the moment I nod off I stop breathing – I’m going on 7 days with NO sleep.…[Read more]