@mkcole
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Michael replied to the topic Life span in the forum Diagnosis Information and General Questions 5 months, 1 week ago
Hello everyone my name is Michael/ Mike and I’ve been on OFEV almost two years. I also have a PFT test every 6 months. I use oxygen almost all day.I try to do as much Puluminary rehab as possible. I’m open to suggestions. Thanks
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Michael posted an update 1 year, 4 months ago
Having problems with cramping.. I’m taking Ovev 100mg twice a day. 150 was to strong for my body. Any suggestions?
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Michael posted a new activity comment 2 years, 3 months ago
Thanks Mark for your reply. I’m not sure what skin rejuvenates are but willing to give it a try. I have an appointment with my pulmonary Doctor this coming Monday I will ask him. I have read that ofev can cause dry skin and a host of other side effects. I’ve stopped taking the 150 mg and waiting for the 100mg to arrive.
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Michael and
Raymond White are now friends 2 years, 3 months ago
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Michael posted a new activity comment 2 years, 3 months ago
Thanks mark, trying to navigate the forum . Where do I start?
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Michael posted an update 2 years, 3 months ago
@chyna Hi chyna, just joining the forum.
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Michael posted an update 2 years, 3 months ago
Hello everyone I’ve been diagnosed with having ipf about three months and taking ofev. I just had my dosage reduced from 150 mg to 100mg. I was having stomach cramps and dry skin issues
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Hello Michael, sorry to hear you have been having problems tolerating Ofev. Hopefully with the new protocol you will be able to tolerate. There are skin rejuvenators on the market. The transplant meds I take cause my skin to be thinner than I had previously. There are lotions and creams to combat these issues. I did my own research and also asked…[Read more]
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Thanks Mark for your reply. I’m not sure what skin rejuvenates are but willing to give it a try. I have an appointment with my pulmonary Doctor this coming Monday I will ask him. I have read that ofev can cause dry skin and a host of other side effects. I’ve stopped taking the 150 mg and waiting for the 100mg to arrive.
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Michael became a registered member 2 years, 4 months ago
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Hello Michael, thank you for joining your pulmonary fibrosis forum. Welcome!
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Thanks mark, trying to navigate the forum . Where do I start?
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