bootgirl
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I see you live in NC also. Have you considered going to Duke for 2nd opinion and treatment options?
My husband has familial pulmonary fibrosis. He is up to 8L of O2 during waking hours, and less at night.
Trust you can get some good answers and help!
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When this became such an issue to my husband, I mentioned it at his last appt. with pulmonologist. He prescribed a nebulizer w/ Levalbuterol and this has made it much easier for him to get rid of all the mucus.
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Ultimate Pulmonary Wellness was made available to read online thanks to a generous gift by the Nora and Roger Gimbel Foundation. https://pulmonarywellness.org/book/
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I am so very sorry for your great loss ♥
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First, sorry about your husband – it’s tough to see the men we love not able to do things they’d like to. That being said, to answer your question, my husband was diagnosed 10/2019. He tried OFEV, but as others, the side effects were rough. Now, he has been on Esbriet for 1½ years, and doing great with it (not progression of scarring on last CT). He does need O2 24/7 but has a great attitude, and pulmonary rehab helped a lot with his stamina. He continues now at home with the walking on treadmill daily. lynne