Carol Dyck
Forum Replies Created
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I read with great interest the previous writings here and really can’t add too much to what has already been said. In 2014 I was having an x-ray done in preparation for a shoulder replacement, when my doctor mentioned the ‘scaring’ in my lungs. At that time I didn’t think I had any breathing problems.
Since then of course, it has been getting progressively worse and I have been on oxygen for walking and OFEV now for about 2 and a half years. My energy level has certainly decreased over the years, but as long as I am sitting or lying down, I have almost no breathing problem at all.
I too have wondered about “the end” and assumed it will be a ‘smothering’ … which isn’t a pleasant thought.
We just have to take one day at a time and make the best of every day. Like you Paul, I trust God will care for us when our time comes.
It is comforting to know that I’m not alone in this awful disease and it’s helpful that we can chat and express our feelings to people who understand.
Carol
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Hello,
I have been taking OFEV 150mg for 9 months now and have had blood test done monthly to monitor liver enzymes elevation . There has been a ‘decrease’ in the progression of the disease since taking OFEV. The only side effect that I seem to get from this drug is slight nausea around noon hour. It lasts for about an hour, then disappears.
All my life I have had normal blood pressure. Whether it’s the OFEV or the disease itself, but my BP has slightly elevated in the last month to the point that I’m now on a very low does of BP medication.
Hope this helps people who are apprehensive about taking OFEV.
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What beautiful words you wrote and what inspiration it gives everyone to think about how the environment is “resting” for a short time during this horrid pandemic. I read that birds were heard singing and chirping in cities in China where they haven’t been heard for years. Yes, I truly believe ‘good’ will come from this and hopefully the world will learn that we have to give it a ‘rest’ once in a while, but hopefully in other ways than what we’re going through right now.
Carol Dyck
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Hello:
My name is Carol Dyck and live in Mississauga (outside of Toronto). I’m 83 and was diagnosed with IPF in 2014, but in April 2019 I started using oxygen for ‘walking’. Ofev is the only drug I take, so I guess that’s a “plus”. However, I’m only on my fifth day of taking 150 mg. twice a day, and so far have had no side effects. After reading some of the posts, I’m not out of the woods yet just because I haven’t had any side effects after 5 days of use! I do have to get a blood test once a month to check my liver. This disease is so new and scary to me as I have been healthy all my life, and I am finding it very difficult to accept this into my world!
Carol