Carolyn
Forum Replies Created
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I was diagnosed with IPF in 2015 and been on Ofev since then. Just this past month I have started coughing. I cough at intervals and have brought phlegm up just a few times. I feel like I have post nasal drip all the time. I currently take 5mg of prednisone daily and on occasions I have taken 50 mg for five days. I would like to know if anyone has had any luck with a nebulizer? In the past prednisone made my very jumpy and I would be awake all night so I am apprehensive to take bigger doses I don’t know what to do
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I have read numerous articles on this disease and can’t say I’m any wiser. I am on 02 24/7. I see people on either Esbiret or Ofev switching the drug. With my Ofev there is a support group provided by the drug company that I correspond with. They have a nurse on call 24/7. I just started with them and they will have a nurse call me monthly. Does Esbiret have a support group? Good luck.
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Thanks for sharing your stories about the dizziness.
Carolyn
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I have experienced dizziness sometimes in am after breakfast. I have days to hen it lasts on and off throughout the day just sitting,standing , walking. I have not been too successful in getting it figured out. I do have other conditions ( congestive heart failure, digestive issues). This week my dr prescribed a 6 day course of prednisone and I also started a peptide. My dizziness has been very short lived. I am anxious to see what happens when I reduce the prednisone. Does anyone take prednisone daily and if so what dose? Also has anyone found a nebulizer to help?