Cheryl posted a new activity comment 2 years, 10 months ago
Hi Majella. In reading your post, I found it very concerning as I too have symptoms that basically mirror yours. I just passed my one year post op of VATS (rt. lower lung removed for CA) and diagnosed in 2017 with PF, which I did nothing about until last year.
I handled my recovery with minimal O2 use and didn’t use it or think I needed it until…[Read more]
Cheryl replied to the topic Mask Controversy Frustrating as a Chronically-Ill Patient in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 10 months ago
I can’t speak for anyone else, but every day that I listen to the news on the updated Covid-19 new case and death tole statistics, it just boggles my mind how somehow wearing a mask became not only a political issue, but a moral issue as well.
Being a PF patient on O2 for the past year, I knew back in February that I probably needed to take…[Read more]
Cheryl replied to the topic Breathing Issues and Started OFEV This Week in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 10 months ago
Thanks to everyone who has replied to my inquiries. As each day passes I am doing my best to adjust. I will say that I don’t care for the underlying nausea. I am dealing with it, but am tired of it…..
Cheryl replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 2 years, 10 months ago
Hello Everyone. I just started on OFEV last week and reading everyone’s comments/suggestions here has been very helpful for me. I have had GI issues for most of my life and starting on the OFEV was very scary for me. I decided to go ahead and take it anyway because I am hopeful that it will really be able to help me, and I can always stop ta…[Read more]
Richard Powers and Cheryl are now friends 2 years, 10 months ago
Cheryl started the topic Breathing Issues and Started OFEV This Week in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 10 months ago
Hello all. I am a “newbie” to this site. I am one year post op from rt. lung CA removal and pulmonary fibrosis diagnosis. I just got started on OFEV this week and wanted to get different people’s thoughts/observations on how this med makes you feel once the body adjusts to it. I’ve read all kinds literature that tells me about the possible ho…[Read more]
Cheryl became a registered member 2 years, 10 months ago
Hi Cheryl, sorry to hear about your condition and yes it is easy to become dependent on the 02. I am using it most of the time as I become very SOB when I do something like feeding my cat or making a cup of Tea, then have to rush back to where my 02 is. I have a trolley but find it very cumbersome dragging it around. My fatigue level still very…[Read more]