[Jamie]

I’m so happy to read that your doing good and thank you so much for the information. I’m trying to understand and learn about this and it’s very hard to take in. I just want to help her and make her better but reading other people’s experiences with dealing with this makes me feel better to know she can make it and keep her mind focused on getting better.

 

[Jamie]

My mom was just diagnosed with pf and I found this forum in hopes that I could learn something that seems to help her heal or get better. My mom was working right up till she just couldn’t go anymore and went to the hospital. She was there two weeks and they sent her home with her oxygen and medicine which I’m not sure what they have her on. I am gonna find out, I don’t live near her sadly and so my sister is helping take care of her. She had an appointment today and just the walk to the car and the drive there was to much for her. They almost sent her back to the hospital cause she was collapsed in the hallway. Any advice will be much appreciated. She seems to be doing much better since she got home and rest and her oxygen was at the strength needed. I worry the Florida heat may not be good for her. Thank for any advice in advance. Best wishes to everyone struggling with this, my prayers and heart goes out but I am so glad to read that there is positive stories out there.????