Debbi Rummery
Forum Replies Created
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I have been on Ofev for 8 years, originally 2 x 150mg daily and now 2 x 100mg daily.
I have found if I ate breakfast and took Ofev following it I got diarrhoea but if I leave taking it for about 30 mins to give the food time to settle then I have no side effects at all.
Hope this helps, Debbi
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Hi Mal,
Mareeba Gold pineapples are the best hahaha. Not a big fan of mango though.
Deb
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Hi Malcolm,
Cost of Ofev in Aust is $40.20.
Regarding your diet, I was part of a Named Patient Program because Ofev hadn’t been approved in Australia when I started on it. The drug company produced a booklet with helpful guidelines. The most important was a LOW fibre diet and try for 6 smaller meals each day. I started on this but have now gone back to my normal eating plan and foods in moderation. I really think it’s a bit of “trial and error” until you find what suits you. We are all different in our eating habits and foods so what works for one does not necessarily work for another.
There’s also things like pineapple which is a high fibre food but excellent at breaking up mucus. I love pineapple so I choose to eat it even though it’s not on the approved list.
Good luck, Debbi
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Hi Mal, ( @mal-com )
My apologies. I did reply to you but it seems to have disappeared.
Cairns in May is the best time to be here. Can we meet up while you’re here or are you staying in Port Douglas? My e-mail address is [email protected]
Regards, Deb
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Hi Steve,
I will admit to a bit of stalking before joining in and I quickly realised this was the place for me to be. I have wonderful support from my husband, children and sister but I think you sometimes need to speak to someone who is going through it too. I’m reading some of the back topics and can relate to a lot of them.
I hope you get back home soon.
Regards, Debbi
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Hi Steve,
Thanks for the info. I’ve read quite a few of your posts and will look into it a bit more.
At the moment I just walk on my treadmill for 20 mins daily in air-conditioned comfort because it’s a bit too hot to walk outside. It’s our summer and we’ve had quite high temps and high humidity.
I did the Pulmonary Rehabilitaion course in 2017 and made some great friends. We started a Social and Support Group as there wasn’t one in Cairns. Not many here with IPF either so it’s for all lung conditions.
I’m looking forward to meeting you all.
Debbi
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Hi everyone.
I’m 62 and I live in Cairns, Qld, Australia – right on the Great Barrier Reef. I was diagnosed with IPF in October 2015. I started Ofev in December 2015 (one of the earliest Australians to start the medication) so I’m a little over 3 years now. I’ve had a few ups and downs with diarrhoea and mild nausea but have finally settled into a routine and it’s all looking good.
Kind regards, Debbi