Biography

Name

Marilyn Cellucci

Nickname

marilyn-cellucci

Year of Birth

10/24/43

Gender

Female

Location

Philadelphia, PA

Relationship

Patient

Short Bio

Was diagnosed with IPF in 2009. Sought a second opinion. Second pulmonologist said it wasn’t, but didn’t know what it was. Whatever it was, it remained stable until 2018. Then it went stable again. Since then there have been progressions. The doctor saw me once a year to check if it was getting worse, On my CT scan this month, scarring was dramatically increased. (Had already had the PFTs and 6-minute walk test. Now I am waiting for blood work to be analyzed.

Type of Diagnosis

IPF

Treatment / Medical Facility

Penn Medicine

Current medication regimen

High dose pred x 6 weeks, then possibly Ofev.

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

None. Need some help.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

2009

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