Wow Lori, I just read your post. Firstly, I am so sorry you have experienced so much loss and suffering. I was diagnosed last year, on Ofev 100mgs, but just had an exacerbation which was the first time I let the disease affect me. I rely on my Christian faith and it sustains me. I would love to be a offer a way to support you and share in your difficult journey. Not sure how we get a closer communication, but I will look into it. Blessings for you and all our fellow IPF spirits. Denise
Hi Mimi, You and me both! I don’t have the comment side effect, but I have become quite proficient at retching! I find the 12 hr rule should be respected, and I do best having protein with the pill. (digests slower). The Ofev does work, so I think it’s good to find a way to tolerate it. Good luck to you.
Hello Lori, Understandably, the forums don’t allow for personal info to be shared. I will pray for you and your family. Please keep me in yours. Stay strong and find God’s beauty which is everywhere to help comfort you. Blessings and Grace, Denise
Report
There was a problem reporting this post.
Block Member?
Please confirm you want to block this member.
You will no longer be able to:
See blocked member's posts
Mention this member in posts
Invite this member to groups
Message this member
Add this member as a connection
Please note:
This action will also remove this member from your connections and send a report to the site admin.
Please allow a few minutes for this process to complete.