Forum Replies Created

  • Dicky Griffin

    Member
    January 27, 2022 at 7:54 pm in reply to: Shameless Plug: New IPF/ILD Book!

    I purchased the Kindle book today and selectively read a couple of chapters that I feared the authors would over step … they didn’t.  It seems like a good investment.   THANK YOU TO THE AUTHORS  … Since my PF-ILD diagnosis life has not been good.  I’m an old devil but was not intending to retire however my lung function has continued to slip during the last six years.   While I have fantastic family support and amazing doctors I have been mentally struggled.  A couple of things I have read today give me hope.   I will post again after I finish. DG from Nebraska

  • Dicky Griffin

    Member
    January 4, 2022 at 3:28 pm in reply to: Prospective change of meds: OFEV to Perfenidone

    Metamucil twice daily helped me

  • Dicky Griffin

    Member
    November 20, 2021 at 9:16 pm in reply to: Having to lose weight

    To combine with the BMR site Christie share (a tremendously useful site), consider a site from NIH (https://www.niddk.nih.gov/bwp) which allows you to analyze your own food intake needs relative to body weight goals you set.  The parent site addresses the “3,500” calorie target for a pound loss (https://www.niddk.nih.gov/research-funding/at-niddk/labs-branches/laboratory-biological-modeling/integrative-physiology-section/research/body-weight-planner?dkrd=prspt3145) … changes in weight during while dieting in not all associated with the 9 grams / calorie in fat which was the foundation for the 500 calories per day below BMR to lose a pound a week (3,500 calories).

  • Dicky Griffin

    Member
    November 19, 2021 at 7:28 am in reply to: Having to lose weight

    Yes Christie … I was thinking one thing and mis-typed … “I should have noted support for Christie’s recommendations”.  Your help in finding the BMR calculator is critical.  My BMR has dropped almost 200 calories associated with my weight loss since I began my quest to get in shape for a lung transplant.  The weight started coming off slower and the change in my BMR is most likely the cause.  When I started I targeted 1400 calories and am still trying to stay with in a 100 calories of 1400.  My weight loss has slowed to 1-2 lbs per week.  VERY sorry for my mis-type … your recommendations seem on target … I wish I have your’s and Russell’s input when I started my journey in August.  Dicky Griffin Lincoln, NE.

  • Dicky Griffin

    Member
    November 17, 2021 at 6:41 pm in reply to: Having to lose weight

    I should not have supported Christies recommendation … also very good input.  The BMR site she provided provides you with “gold” information.

    Additionally she mentioned the importance of fiber and I think she is spot on … I have upped my fiber intake sufficiently to not feel hungry and it was not that tough to find high or at least higher fiber foods I enjoyed eating and replacing the lower fiber foods I was “accustomed”  to eating for example lower calorie higher fiber breads and I have come to really enjoy “All Brand” and “Fiber-One” cereal with a “Light and Fit” yogurt for breakfast along with fresh fruit.   All the best Dicky Griffin, Lincoln, NE

  • Dicky Griffin

    Member
    November 17, 2021 at 4:47 pm in reply to: Having to lose weight

    Luciano, Russell is on point … I too am 71, 5’7” and weighted 225 in mid August …  The transplant team told me I needed to reach a BMI of 30 or below and doing the things Russell discussed I have lost 38 lbs and just tow more pounds to reach the 30 BMI.

    I too use MyFittnessPal for food tracking but also use LoseIt and have found the LoseIt app on my phone and iPad (and online … all sync) to be the easiest to use … I continue to track on both programs as the food nutritional information is a little different between the program’s data bases BUT the differences are small.

    I’ve been keeping my calories under 1500 per day (occasionally go over but generally stay under the target).  Both programs report nutritional analysis of your progress (protein, carbs, fat, etc) … I don’t use all the features of either program (mainly calorie counting and weight & BMI progress).

    I did have to give up a couple of dear friends (Ben & Jerry) but generally as Russell mentioned it success has much more to do with portion control and selection of foods that favor my calorie & nutritional (protein, carbs and fat) goals.

    Remember Russell’s recommendations … at least for me I think he is spot on.  Keep in touch … If you want my personal email, let me know and we can continue to visit.   Dicky Griffin, Lincoln, NE

  • Dicky Griffin

    Member
    November 14, 2021 at 5:19 pm in reply to: Being discharged with ipf – is it normal

    It’s been a couple of months since you original post.  How is your husband doing?