Forum Replies Created

  • David S

    Member
    August 9, 2023 at 9:53 am in reply to: Dizziness with Esbriet

    I take 3-tab dosing 3 times a day and usually I’m dizzy for about 1 hour after I take it and with that my sinuses will also drain  for about the same amount of time.

  • David S

    Member
    July 15, 2023 at 12:18 pm in reply to: How quickly can pulmonary fibrosis progress?

    Thats a good question, for me according to the doctors mine is progressing slowly. In my mind and the way I feel sometimes, and reading some of the responses on this forum i don’t know how some people are surviving, my lung capacity at this time is 50% my O/2 levels range from 90 to 97 percent which should be great but I can get winded quickly, have no energy, and very little appetite. But I still go to work every day enjoy my 4 grand kids and my loving wife, I try to do as much as I can on the good days and just survive the others i have completed pulmonary rehab and try to follow there guidelines and breathing tips  I’m on pirfenidone 3 taps 3 times per day with minimal side effects, I don’t know if any of this will help you but keep reading the forum and take this journey one step at a  time. I’ve been dealing with lung issues since 2016 and was diagnosed with IPF in March of 2022.

  • David S

    Member
    June 12, 2022 at 8:44 am in reply to: Top 4 Words You’d Use to Describe IPF

    disappointing

    debilitating

    punishing

    cruel