Log In or Register to Join The Conversation!
  • Ed posted a new activity comment 5 months ago

    Hi Charlene, we cancelled our vacation! It was just to risky cruising with this virus so contagious. As it is disappointing maybe the third try will be the charm…
    I wish you good health, and to all my fellow warriors – stay safe, healthy and strong at this trying time.
    😷 Ed

    • Hi @edgeorge,

      Thanks for writing me, although I am so sorry to hear you had to cancel your vacation. For what it’s worth, as this disease continues to spread like wildfire, I do think this was the right decision. I’m sure you are so disappointed, but think ahead to when you will get to go and enjoy every minute of it worry free of this virus.…[Read more]

  • Ed posted a new activity comment 5 months, 2 weeks ago

    Thanks for your insite Charlene! I guess to be vigilant and try to protect yourself is key. Sorry to hear of you recent illness, you obviously fought your way through it, good for you. Enjoy your trip to California, stay well! We are looking forward to our vacation, it’s kind of a “do over” as two years ago we had a Mediterranean cruise booked and…[Read more]

    • Thanks Ed, you too! It is so tough not to be worried about this new virus, but I think it is important for us to know we’re doing everything in our ability to protect ourselves from it. However, I just can’t let it interfere with my love of travel (IPF has done that enough, although I would completely respect someone’s decision not to travel right…[Read more]

      • Ed replied 5 months ago

        Hi Charlene, we cancelled our vacation! It was just to risky cruising with this virus so contagious. As it is disappointing maybe the third try will be the charm…
        I wish you good health, and to all my fellow warriors – stay safe, healthy and strong at this trying time.
        😷 Ed

        • Hi @edgeorge,

          Thanks for writing me, although I am so sorry to hear you had to cancel your vacation. For what it’s worth, as this disease continues to spread like wildfire, I do think this was the right decision. I’m sure you are so disappointed, but think ahead to when you will get to go and enjoy every minute of it worry free of this virus.…[Read more]

  • Ed posted a new activity comment 5 months, 2 weeks ago

    Hi Charlene,
    Our Hawaii vacation is getting closer and now the coronavirus is a concern! How are IPF patients coping with travel? We cruise from Hawaii to Vancouver after a three day stopover in Las Vagas, then we fly back to NL. This is my retirement cruise and very much looking forward to it, but not at the risk of harms way.
    Have you heard…[Read more]

    • Hi @edgeorge

      Thanks so much for writing and on such a pertinent topic right now! The coronavirus is quite scary for those of us with lung conditions and compromised immune systems. I am currently on my way to California for some rare disease day initiatives and a vacation and the coronavirus was concerning to me at first as well. It still is, but…[Read more]

      • Thanks for your insite Charlene! I guess to be vigilant and try to protect yourself is key. Sorry to hear of you recent illness, you obviously fought your way through it, good for you. Enjoy your trip to California, stay well! We are looking forward to our vacation, it’s kind of a “do over” as two years ago we had a Mediterranean cruise booked and…[Read more]

        • Thanks Ed, you too! It is so tough not to be worried about this new virus, but I think it is important for us to know we’re doing everything in our ability to protect ourselves from it. However, I just can’t let it interfere with my love of travel (IPF has done that enough, although I would completely respect someone’s decision not to travel right…[Read more]

          • Ed replied 5 months ago

            Hi Charlene, we cancelled our vacation! It was just to risky cruising with this virus so contagious. As it is disappointing maybe the third try will be the charm…
            I wish you good health, and to all my fellow warriors – stay safe, healthy and strong at this trying time.
            😷 Ed

            • Hi @edgeorge,

              Thanks for writing me, although I am so sorry to hear you had to cancel your vacation. For what it’s worth, as this disease continues to spread like wildfire, I do think this was the right decision. I’m sure you are so disappointed, but think ahead to when you will get to go and enjoy every minute of it worry free of this virus.…[Read more]

  • Ed and Profile picture of Mark KoziolMark Koziol are now friends 9 months, 1 week ago

  • Ed posted an update 9 months, 1 week ago

    HI Charlene, I am new to the forum and enjoyed following your Hawaii holiday. I am going on a vacation in May which will take me from NL to Las Vegas for 3 days ,then to Hawaii where I will spend 3 days before boarding a cruise that will take 3 Islands in Hawaii then of to Vancouver. I was diagnoses with IPF in 2016, successfully taking Esbriet…[Read more]

    • Hi @edgeorge

      Nice to hear from you, thanks for writing and welcome again to the PF forums. My holiday in Hawaii was one I’ll never forget, it was an amazing experience and I hope you love the islands just as much as I did. I was also diagnosed in 2016, taking Ofev. The sun exposure is something I’d really caution you to be careful of, especially…[Read more]

      • Hi Charlene,
        Our Hawaii vacation is getting closer and now the coronavirus is a concern! How are IPF patients coping with travel? We cruise from Hawaii to Vancouver after a three day stopover in Las Vagas, then we fly back to NL. This is my retirement cruise and very much looking forward to it, but not at the risk of harms way.
        Have you heard…[Read more]

        • Hi @edgeorge

          Thanks so much for writing and on such a pertinent topic right now! The coronavirus is quite scary for those of us with lung conditions and compromised immune systems. I am currently on my way to California for some rare disease day initiatives and a vacation and the coronavirus was concerning to me at first as well. It still is, but…[Read more]

          • Thanks for your insite Charlene! I guess to be vigilant and try to protect yourself is key. Sorry to hear of you recent illness, you obviously fought your way through it, good for you. Enjoy your trip to California, stay well! We are looking forward to our vacation, it’s kind of a “do over” as two years ago we had a Mediterranean cruise booked and…[Read more]

            • Thanks Ed, you too! It is so tough not to be worried about this new virus, but I think it is important for us to know we’re doing everything in our ability to protect ourselves from it. However, I just can’t let it interfere with my love of travel (IPF has done that enough, although I would completely respect someone’s decision not to travel right…[Read more]

              • Ed replied 5 months ago

                Hi Charlene, we cancelled our vacation! It was just to risky cruising with this virus so contagious. As it is disappointing maybe the third try will be the charm…
                I wish you good health, and to all my fellow warriors – stay safe, healthy and strong at this trying time.
                😷 Ed

                • Hi @edgeorge,

                  Thanks for writing me, although I am so sorry to hear you had to cancel your vacation. For what it’s worth, as this disease continues to spread like wildfire, I do think this was the right decision. I’m sure you are so disappointed, but think ahead to when you will get to go and enjoy every minute of it worry free of this virus.…[Read more]

  • Ed posted a new activity comment 9 months, 1 week ago

    Thanks for adding me to the group

  • Ed became a registered member 9 months, 1 week ago

Copyright © 2017-2020 All rights reserved.

©2020 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account