Frank
Forum Replies Created
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Hey guys I am in the same position as the two of you with the exception my doc sees me every 3 months. I am on Ofev as well and no side effects. My bloodox is in the 90’s and sometime the high 80’s. I do have the shortness of breath as well. Didn’t know you could purchase a spirometer but will do that. I do get a PFT every time I go so as to see if there is any decline in lung capacities I would imagine. I am limited in what I can do physically, lifting and walking long distances as well as a change in my voice , but feel like you as far as the guilt. I read some distressing stories and would hope that I do not progress to that point. I wish you guys well and please do not give up the battle.
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Great news John wish you well I started the Ofev about three months ago and just going off it because I have had adverse reaction in my intestines so I’ll let everyone know what goes on with that but I wish you well I know what it’s like take care
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I’ve been on Ofev a very short period of time basically only two weeks but whether it’s mental or not it seems to be working for me I’m not having as much shortness of breath and I’m able to do some of the things that I was able to do before being diagnosed