[Maureen]

Morning James
I have a Chinese acupuncturist who put me on cough medicine called Nin Jiom Pei Pa Koa. It works well for me cause I have Restless Legs so I can’t take “off the counter cough meds”.

 

I tried to take a picture of it, but can’t figure out how to include it!!

thanks for sharing James!

[Maureen]

I am on this crazy road of diagnosis. My GP said all signs are looking like PF. My respiralogist says my ERV at 16% is due to abdominal fat pressing on my diaphragm ( like a pregnant woman). She says the person who interrupted my breathing test used the wrong word when he wrote ” severely  reduced 0.16L” so now I have to wait for a 2nd CT scan in January to confirm the diagnosis ( or not)

I am 5’3″ & weigh 155. She body shamed me so much that I will lose weight before my next scan.

I am wondering how others were diagnosed. Does it take a year because the scans are a year apart?

This is a great group! Glad I found it.

[Maureen]

Rebecca, thanks for sharing! I will take your advice & start monitoring what I’m eating to see if there is a correlation. I didn’t think of that!!

 

Stay safe!

Maureen

[Maureen]

Thanks Patricia for sharing your experience. My O2 (oxygen) has registered normal. What was/is your readings? I take CBD & it is very effective to ease the pain. I need to wait till January for a 2nd CT scan to confirm the diagnosis. I do have a Cpap that I use every day.

I am so grateful that you shared your experience. I don’t feel so alone on this journey.

Stay safe!

Maureen

[Maureen]

Madonna, that sounds very painful. Mine feels like the muscles ache. No joint pain. I use CBD oil several times a day. It does control the full body aches. Just not sure this relates to PF that’s why I am asking.

Hope today is a pain free day for you Madonna!

[Maureen]

I am waiting too for a diagnosis- which is leaning towards PF. My respiralogist said I need a second CT scan (1yr apart) to confirm. So they may not have all the answers at your 1st visit. Keep us updated!