I’m wondering if cinnamon and raisins in oatmeal would work? I’d like that better.

I had a spontaneous pneumothorax in 2014. They reinflated the left lung three times but it wouldn’t stay inflated so they had to do a Pleurodesis. It was then they diagnosed IPF. Down hill since then.

With oxygen coming out I don’t see how water can flow back in. I shower all the time with the cannula in my nose and have never got any water in it.

Thought you were older than one.lol

Darlene, Sounds like my life. I think we’re both thankful for still being here in our 80s and enjoying life the best we can. Sometimes my o2 goes lower than it should but I try not to stop it from doing what I want. Hang in there!

Hi Charlene,
The highlight of 2022 for me was celebrating my wife and my 60th wedding anniversary. Our daughter and her husband flew out from Wisconsin to help us celebrate and neighbors threw a wonderful party in or honor. Our son, also from Wisconsin, was here for Christmas which topped of a great year in spite of my IPF and emphysema.

Two thumbs up to James Pillows. Eep it up as long as you can.

Hi Wes, Gordon Sandmire here. I attended your first zoom meeting so thought I would be included in your future mtgs but evidently is not the case. I didn’t even get a notice about time or date. What do I have to do to be included? I found your first session very informative so would like to be included.

True!

Wish drs would stop that 3 to 5 years nonsense. All of us are different. With meds you might live much longer. Perhaps even a cure will be found. No sense being scared with that 3to5 cr**. Does more harm than good. I’m in my 8th year after diagnosis and still able to do most things but much slower. Hang in there.

My reply was to Darlene Cochran

I really enjoyed reading your letter. You expressed yourself eloquently in a manner I can’t. You have a wonderful way of getting your thoughts out. Many are the same as mine but much better said. Thank you.

Good for you, venting is therapeutic and this is a good place to do it. We’re all going thru this so no apologies are needed.

I’m pretty much in agreement with you. I too, at 81, am in the final stages of my life and it hasn’t affected me much mentally. I am grateful to have lived this long and feel more sorry for those much younger having to go thru this horrible disease.

I am now 81 and a retired tool and die maker. We had a shop in a thermoset plastics injection mold company.(15 yrs). The fumes from the molds permeated our area daily. I suspect but cannot prove that may have affected my IPF. I was diagnosed with IPF following a collapsed lung in 2014 although I had some breathing problems even before I retired… Read more

Exhausting

hopeful(for a cure)

debilitating

acceptance

 

 

Hi Charlene, I received my copy from Amazon last week and have read about a third of it . So far I have gotten some good tips from it. Mostly on breathing exercises and staying active. I would highly recommend this book to anyone with lung problems not just those of us with IPF.

I have it reserved on Amazon but didn’t know when it would be available til now. March 14 it looks like. I’m sure I will get much info from it.

I find if I eat half my meal then take my Ofev and finish my meal I get less side effects. (Mostly diarrhea)

I’m new to P F News and live at 3000 ft above sea level. I don’t notice much difference when I am at sea level except for sleeping. I am more comfortable without oxygen then.