[grace-mckeown]

Hi everyone and especially you Charlene. I am responding to your tag Charlene.

Yes I was part of the patient group that contributed to ‘ Guide to Pulmonary Fibrosis and Interstitial Lung Disease” and I am so glad that Noah Greenspan and Charlene instigated this project.The group came together originally meeting regularly with Noah ( over midnight often for me,being in the UK ) and sharing ideas together. Charlene was instrumental in administering that group and did it so well. I had first contacted Charlene via this site so it was a fortuitoous meeting. It felt like, and was, a wonderful opportunity to share this journey with fellow ILD contributors. We are still meeting up regularly.

I am so glad that some of you have already seen it, and thank you for the kind words already expressed. I look forward to any further comments and ideas of areas in which the book may be useful. I intend giving a book to my consultant in the UK and discussing other channels  of influence with the respiratory department.

Grace