Forum Replies Created

  • Majella Callaghan

    Member
    October 24, 2020 at 1:34 pm in reply to: Toxic Positivity When Living with Pulmonary Fibrosis

    Yes, I have come across it with my extended family.  For example,  They say things like ‘you sound really good today’ when I’m speaking on the phone with one of them.  I might have a coughing fit during the conversation with them but that doesn’t seem to make me any worse to them.  But I can understand that they are only trying to be positive for my sake and underneath it all they are probably saying to each other that I didn’t sound too good!

  • Majella Callaghan

    Member
    October 24, 2020 at 10:51 am in reply to: Hair thinning: a side effect of Ofev?

    I was on Ofev for about 1 and a half years and came off it in June this year as it was causing gastric problems with weight loss of about 1 stone over a year.  As I am a small build, I could not afford to lose  much more weight.  My Consultant took me off it.  I noticed my hair thinning over that time but I am still losing hair since I came off the Ofev.  My hairdresser has also brought my attention to it.  I always had a lot of hair before this but now notice the lack of thickness.  Did anyone else come off Ofev and continue to lose hair?