Forum Replies Created

  • HughL

    Member
    November 7, 2023 at 2:45 pm in reply to: Looking for alternatives for IPF treatment

    I tried Serrapeptase for several months and no real results. I would take it at 3 am with water on my empty stomach so it would do its work.

    I ordered Nattokinase and will start on it only. I have been on Esbriet since 2015 but at 80 years old I am not far from going on hospice because I am up to 9 liters of oxygen continuously and have even a hard time walking over 45 feet without giving out of breath and have to sit down.

    I just wish I could have one day of relief.

    I wish you the best of luck and hope the supplements help you.

  • HughL

    Member
    October 10, 2023 at 2:26 pm in reply to: New to oxygen

    I am 80 and have had IPF for 9 years and been on oxygen continuously for 8 years. I am up to 8 liters a minute now.

    My first year I could be off oxygen while sitting etc but it got worse, I don’t want to be the barrier of bad news, but as the disease gets worse the only thing that can keep you moving is medical oxygen.

    I was able to even ride my motorcycle up to last year as long as I had a large oxygen tank strapped to the back of my bike. Sad to say I just can’t even get out of the house much anymore.

  • HughL

    Member
    November 2, 2023 at 4:23 pm in reply to: Serrapeptase and nattokinase and Ofev

    I take Esbriet