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jaime L manriquez

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@jaimeluciano

@charlene-marshall Hello charlene , long time no post, Well my flegm ordeal has tapered down quite a bit I credited to prednisone for it , but only 5mg a day for a long time use. The bad news is that my IPF itis progressing more quickly now. Remember I was diagnose late 2012, now I´m on oxygen 24/7 almost. Can´t do anything physically ,if s […] View
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    jaime L manriquez started the topic china coronavirus in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago

    Hi Charlene, about that people coming from china, You are right , for us is too close for confort, Imagine what that virus will do to our already weak inmune system, I don t want to even think about it  …  best wishes

    jaime

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    jaime L manriquez posted an update 3 years, 4 months ago

    can t get rid of phlegm, at least i can sleep well at nites, thaks to FLAMEX with codeine, but during the day lots of it,
    spitting all day long, specially after meals…and exacerbations….best wishes

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 4 months ago

      I hope this improves for your Jaime – so sorry to hear of your struggles with Phlegm. I can’t imagine how frustrating that must be! Might something be causing it to be more frequent as of late, like a cold virus? Hang in there and glad you’re getting some nighttime relief. Charlene.

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        jaime L manriquez replied 3 years, 4 months ago

        Carlene, my phlegm is very clear, my dr said its normal for IPF, but since I m on 5mg a day Prednisone , its much better…other thing I found is the sweets, I cut down to half, also helps to reduce my phlegm,.. best regards from Chile
        jaime

        • Profile picture of Charlene Marshall
          Charlene Marshall replied 3 years, 4 months ago

          Hi Jaime,

          So nice to hear from you and even happier to hear that the phlegm is being reduced by less sugar/sweets intake and the prednisone. It’s interesting, some people with IPF have a dry, chronic cough and some have a productive cough with a lot of phlegm. I’m really glad you’ve found some things that are working for you, thanks for sharing…[Read more]

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    jaime L manriquez replied to the topic Weather-Related PF Symptoms in the forum Weather-Related PF Symptoms 3 years, 5 months ago

    hello Susan,  about your cough and sleepless nites, I suffered the same, time ago, now I take a Dr, prescirption…FLEMEX with codeine syrup at bedtime (a tablespoon) , I sleep well through the nite, hope it work for you, best regards

    Jaime

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    jaime L manriquez changed their profile picture 3 years, 5 months ago

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    jaime L manriquez replied to the topic The Production of C02 From Various Foods We Consume in the forum Healthy Recipe Sharing 3 years, 5 months ago

    wendy, I do exactly what you do, can ´t let my weight go down any further , so I eat normal,

    eat bread, chocolate, and pasta, rice etc. also listening to my body, I m going for the 8 th year since diagnose IPF , feeling ok since I quit ofev, no oxigen needed yet, thank God.

    best regards and a great 2020 for all of you friends

    jaime

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    jaime L manriquez replied to the topic just want to share some of my experience in the forum Canadians Living with Pulmonary Fibrosis 3 years, 5 months ago

    Reshma. .i take FLAMEX  with codeine 3 times a day starting at bed time excellent for coughing. .hope this helps

    best regards

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    jaime L manriquez replied to the topic The Production of C02 From Various Foods We Consume in the forum Healthy Recipe Sharing 3 years, 5 months ago

    hello friends,

    CO2 .

    Im already 20 kg underweight, with no diet at all, imagine if I quit Carbs, and proteins,

    that would it be my early death sentence, thanks for he hint

    jaime

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    jaime L manriquez replied to the topic Weather-Related PF Symptoms in the forum Weather-Related PF Symptoms 3 years, 6 months ago

    Hello Charlene

    I think I ve  commented before about this topic, but in my case , I´m a Canadian living abroad

    Here the weather is quite mild and damp, in summer time we have around 25 c. for a few days, the rest of the year  goes from  2 to 20c  in fall and winter with lots of rain throughout the year, compared with the cold of Calgary , its…[Read more]

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    jaime L manriquez replied to the topic Aloha from Hawaii in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 8 months ago

    Hello Charlene. what an envy, those beautiful pics, and sceneries

    ,here in Puerto Montt , only 8, quite cold…Have a great time there,

    enjoy your stay over that beautiful place…best regards from Chile

    jaime

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    jaime L manriquez replied to the topic air purifiers in the forum Using Our Forums 3 years, 8 months ago

    ( @lwaldschmidt )

    Hello Linda, I have a SAMSUNG air purifier, its a great unit have a lite to show how is the air its going through the filter ..from red to green, also have a bacteria doctor , its tells you the quality of air you are breathing, is about us$ 200.00…best regards

    jaime

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    jaime L manriquez replied to the topic Medformin in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 9 months ago

    Hi Charlene, nope I have not been prescribe metformin for my IPF but Im taking it for prediabetes, mellitus 2..best regards

    jaime

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    jaime L manriquez replied to the topic Medformin in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 9 months ago

    Hello everyone, METFORMIN, i m on it for quite a while 850mg une pill a day, and it seems to help ..anyways I think its worth to try, most of us if we are over 70 years old will need it anyways.. for control the pre-diabetes..best regards

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    jaime L manriquez and Profile picture of Charlene MarshallCharlene Marshall are now friends 3 years, 9 months ago

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    jaime L manriquez replied to the topic Periodic Muscle Cramps & Pain Since IPF Diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 9 months ago

    Hi Charlene, nice to write you again, yes you are right, I suffer a lots of muscles pain, specially after exacerbations (heavy productive cough) on my legs and chest headaches also, after a while they goes away. Is very frustrating sometimes knowing there is no cure for this desease, Hope we can live up to use some of the new drugs that its being…[Read more]

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    jaime L manriquez replied to the topic How do you feel? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 9 months ago

    Dear Charlene, I wanted to comment on how I feel, Apart of my execive over abundant of phlegm, living in a very humid and mild coast line weather seems to help my PF, moving here from western Canada very dry climate, coughfing all day long. Here seems to help a lot  my day by day living.

    best regards to all of you

    jaime

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    jaime L manriquez posted a new activity comment 3 years, 9 months ago

    Hello Rob, thanks for your reply, I got you now, Yes it happens to me too, resting I got the 98% mark sometimes even 100, but as soon as I excert myself like going uptstairs, comes down to 90 or so. Excercising the only way for me is adding some 02 wich i´m not on yet. Next time I see my Dr will ask for the prescription for a 02 machine, that…[Read more]

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    jaime L manriquez posted a new activity comment 3 years, 9 months ago

    Hello Rob, reading your recent post, you get your O2 up to 98% excercising on your elliptical bike, how you do that, when I excercise my O2 falls below 88%, and start coughing.. best regards
    jaime

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    jaime L manriquez replied to the topic To Our Canadian Members: Happy Canada Day! in the forum Canadians Living with Pulmonary Fibrosis 3 years, 9 months ago

    Hello Charlene, would you believe that I just saw yor greetings of Canada day, well let me tell you , I became canadian 40 years ago, I lived most of that time in Calgary AB, but for health reasons I move back to Chile where the summers are way longer and not too dry. Canada is a great country which I m proud  to be part of . I make those greets…[Read more]

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    jaime L manriquez replied to the topic Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 10 months ago

    Hello Charlene, what a great news about new trials happening now, like you said, Hope we live long enough to be able to see an get the cure to this horrible deseas. Still fighting with this phlegm of mine.

    all the best

    jaime

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    jaime L manriquez replied to the topic Statins and PF/IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 10 months ago

    @cynthia-comery-ferguson

    Cynthia, Like I posted the other day to Charlene, Dr prescribed me atorvastatin, it was funny becouse when I got to the pharmacy counter I realized that was a cholesterol medication, Phoned Back to Dr office and he said, yes its not a mistake, statins are for the respiratory track imflamation treatment also. So far so…[Read more]

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