[Jesse]

Yes, since being diagnosed with IPF a few of years ago, many relationships in my life have changed. More people seemed to have left than have come into my life. I certainly understand the ebb and flow of life and also believe that those who stay in your life are meant to be there. At first, the disappointment I felt about those who had left made me a little sad.  I understand everyone deals with terminal disease differently and for some, it is difficult seeing a friend going through this and knowing that they will eventually lose that friend.

Like Charlene, I choose who to tell and who not to.  These days, I have no expectations. I have a smaller ‘core’ group of friends who I know will be there for the long haul and who are a constant. I have learnt to let others go, to continue on their life journey.

The most important relationship in my life is with my wife. This disease has brought us even closer than I could have imagined. We still plan for the future – plans which are turned into goals. If the goals can’t be met, then we will readjust.

And the relationship with my disease? Well, that’s another story!

 

[Jesse]

Like Jaime, I’m underweight do to loss of appetite caused by OFEV ….and still losing kgs. Unfortunately, carbs and a bit of protein is the only way I can try and keep weight on. I guess it’s keeping a balance of what you eat.

May we all eat well and maintain a good level of health as we head into 2020.

Cheers

Jesse