JillT

I think it’s government policy in Australia for all seniors to be vaccinated, plus all “at risk” people and those shots are free. Most GPs have flu vaccination clinics as soon as they can access the current year’s release and remind patients about it. It’s also now also available via most pharmacies, though I believe you have to pay for their…[Read more]

I think it’s very recent research done since the entire genome was decoded. GWAS is an acronym for Genome Wide Association Studies. I wasn’t really aware of the research myself until I watched a recent video from the recent PF Conference:

I went looking for studies on PubMed and found a study specific…[Read more]

Very sorry for your loss, Wendy.

I found your observation about developing an interest in genealogy when coming to terms with our own mortality very telling – exactly the same thing happened to me. I’ve never had any religious or spiritual beliefs – and prior to my diagnosis, no interest in family history etc. Once I was diagnosed with IPF,…[Read more]

I’m not sure if there is a registry in Australia.

On the subject of research, you might find this article of interest, Charlene. Posted at our national news organization in response to long term effects of our recent bushfires. Interesting, but very concerning as…[Read more]

I only wish I could buy a mask to wear – thought I’d better start after the new virus scare, but pharmacy tells me they’ve sold out, as have most outlets. They have more on order, but no idea when they’ll get there. Seems like people are panic buying. Yet, I’ve only seen 1 person wearing a mask recently, so no idea who is buying them all. Bit…[Read more]

I have been on a low carb/cyclic ketogenic diet since being diagnosed with Type 2 diabetes in 2012. I put on about 20kg after quitting smoking after my IPF diagnosis in 2009 and that tipped me into Type 2. By going so low carb, it’s almost inevitable that most sugars, high starch veg and processed grains are eliminated from the diet. I quickly…[Read more]

The first reply in this topic refers to the Garmin Vivosmart 4 and the second talks about the O2 vibe. Both measure oxygen saturation. I think that most sleep monitoring systems also measure O2, but best to check the individual device descriptions to be sure.

Apologies in advance if I’m a bit prickly on this subject, but seems to me you’re using “positive” and “negative” in a pretty judgmental manner here. One man’s “negative” can be another’s “realistic”, while “positive” to one person can mean “denial” from someone else’s POV. There’s no ‘one size fits all’ approach to any illness and we shouldn’t…[Read more]

I totally get your reasoning, Pete. That’s exactly how I felt too when I was offered the drugs. They don’t seem to actually improve quality of life, just slow progression. My fear on hearing this was that the end stages of the disease would also be slowed down, drawn out and possibly more difficult as a result. I’m not interested in adding more…[Read more]

My IQoro device just arrived actually 🙂

I’m in Australia, so a very long way from the EU. Luckily, my sister has relatives by marriage who live in Norway, so her SIL managed to order the device and then forward it to me here in Western Australia. Going to start the training process tomorrow. Will let you know if it helps with my reflux/hiatal hernia.

Thanks, Charlene. I’m currently watching it and it seems to be fairly comprehensive, so I’d definitely recommend to other forum members.

I’m currently trying to obtain one of the IQoro devices (currently only licensed for EU countries) which are apparently helpful for reflux and other functions affected by vagal nerve tone. From some of the…[Read more]