JillT

Thanks for replying, Charlene and Cindy.

I’m seeing the respiratory nurse tomorrow to discuss POC options, so will ask about this and pain in general. I get really weird and wonderful (and sometimes fleeting) pain in many places these days. It seems quite bizarre when I try to explain it though. ISTR seeing an article on IPF and chronic pain…[Read more]

I’m not on Ofev, so can’t answer for what symptoms that might cause, but I’ve recently deteriorated after nearly 10 years of living with the IPF diagnosis without many symptoms, though given where I am now, I’d say the last 2-3 years have seen some gradual changes. My diagnosis was incidental to a CT scan for other reasons.

I’ve only been…[Read more]

When I did a bit further research after the throwing up incident, NAC is supposed to be particularly helpful for COPD  and other phlegmy lung conditions.  My experience of IPF is that my cough is primarily dry and unproductive, so it may not be a useful supplement for me anyway.

The dosage was 600mg 3x day. I think at various times I would have taken it with other pills and sometimes not. Don’t remember anything different about the day that it made me throw up, but it was within about 15 mins of taking it. When I googled for side effects, both the smell and nausea were mentioned so I decided to stop taking it.

My personal experience with taking NAC wasn’t very positive – firstly, the smell that emanates from the capsules is revolting and after a few weeks of taking it, one day with almost zero warning it made me violently nauseous and resulted in vomiting. So, the remaining capsules I had went straight in the bin! I also had a non-stop headache while I…[Read more]