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JillT

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@jill-tanner

Getting ready to watch the latest round of videos from the recent PFF Summit on the subject of Cellular Senescence in ILDs: https://www.youtube.com/channel/UCX7PIZrKrZb6CWJncJboI2g/videos View
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    JillT replied to the topic Dental Issues in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 10 months ago

    Thanks for replying, Charlene and Cindy.

    I’m seeing the respiratory nurse tomorrow to discuss POC options, so will ask about this and pain in general. I get really weird and wonderful (and sometimes fleeting) pain in many places these days. It seems quite bizarre when I try to explain it though. ISTR seeing an article on IPF and chronic pain…[Read more]

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    JillT replied to the topic How do you feel? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 10 months ago

    I’m not on Ofev, so can’t answer for what symptoms that might cause, but I’ve recently deteriorated after nearly 10 years of living with the IPF diagnosis without many symptoms, though given where I am now, I’d say the last 2-3 years have seen some gradual changes. My diagnosis was incidental to a CT scan for other reasons.

    I’ve only been…[Read more]

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    JillT started the topic Dental Issues in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 11 months ago

    I’m wondering if anyone has similar issues with dental pain/issues?

    I seem to get quite frequent pain in both jaw and individual teeth, even becoming convinced on a few occasions that I have an abscess brewing including painful lumps under the gum, etc.  Yet when I visit the dentist and they take XRays, no infection or signs of issues are found.…[Read more]

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    JillT replied to the topic Supplements in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 11 months ago

    When I did a bit further research after the throwing up incident, NAC is supposed to be particularly helpful for COPD  and other phlegmy lung conditions.  My experience of IPF is that my cough is primarily dry and unproductive, so it may not be a useful supplement for me anyway.

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    JillT replied to the topic Supplements in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 11 months ago

    The dosage was 600mg 3x day. I think at various times I would have taken it with other pills and sometimes not. Don’t remember anything different about the day that it made me throw up, but it was within about 15 mins of taking it. When I googled for side effects, both the smell and nausea were mentioned so I decided to stop taking it.

     

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    JillT replied to the topic Supplements in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 11 months ago

    My personal experience with taking NAC wasn’t very positive – firstly, the smell that emanates from the capsules is revolting and after a few weeks of taking it, one day with almost zero warning it made me violently nauseous and resulted in vomiting. So, the remaining capsules I had went straight in the bin! I also had a non-stop headache while I…[Read more]

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    JillT posted a new activity comment 3 years, 9 months ago

    Thanks Charlene. Now all I have to do is work out how to drive on this forum 🙂

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    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 9 months ago

      @jill-tanner, let me know if you have specific questions and I’ll do my best to help!

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    JillT's profile was updated 3 years, 9 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 9 months ago

      Welcome Jill – I’m so glad you are able to join us 🙂

      • Profile picture of JillT
        JillT replied 3 years, 9 months ago

        Thanks Charlene. Now all I have to do is work out how to drive on this forum 🙂

        • Profile picture of Charlene Marshall
          Charlene Marshall replied 3 years, 9 months ago

          @jill-tanner, let me know if you have specific questions and I’ll do my best to help!

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