Jim
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For over a year I have been taking a 100 at mid day and a 150 at night
My pulmonologist concurred and it reduced the side effects. -
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I have been trying to reply but have had some difficulty and before I lose another comment, I am testing my system.
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We are all experiencing the frustration of a degenerative breathing disorder. Most of us have been able to treat other maladies and recover.
The IPF problem is that no one has yet developed medicine or therapy to cure us or even halt the ongoing march of IPF. It is easy to get angry and blame “incompetent” doctors, therapists or oxygen vendors but the real issue is our “orphan” disease.
I am a 78 year old male wbo was first diagnosed about 3.5 years ago. Initially no need for supplemental O2 but that is now an ever changing adjustment. I can still cope fine at rest but any exertion requires supplemental oxygen.
Until or unless more effective treatment is found we will continue to be swimming against a strong and relentless current.
One of my docs told me IPF may not kill you but you will have it when you die. For me one of the biggest issues is to accept and understand the unfairness of our disease.
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I was fiirst diagnosed in 2018 and have just recently started using supplemental oxygen for activities where I exert myself.
At rest my O2 stays in the 90 to 95 range.
I sleep with a Bipap machine but no oxygen supplement