[John Sharman]

It all sounds suspicious, from the initial diagnosis without a lung function test to the early treatment without a confirming CT scan. To qualify for supplemental oxygen, Medicare has minimum requirements that must be met. OFEV coverage by Medicare Plans is minimal with copays exceeding $2,500 per month. Find a new Doctor!

[John Sharman]

I live at sea level and require supplemental oxygen upon exertion or high stress. Visited the mountains last week and needed supplemental oxygen 24/7. Definitely makes it harder to breathe when in higher elevations.

[John Sharman]

This is an excellent synopsis around Pulmonary Fibrosis.

[John Sharman]

<p style=”text-align: center;”>I too have Scleroderma based ILD.  I was diagnosed 4 years ago with ILD and 7 years ago with Limited Scleroderma.  I have been on Hydroxychloroquine for 6 years, CellCept for 4 and OFEV for 2. Due to a rapid decline in total lung capacity, I recently went off the CellCept and Hydroxychloroquine and started on Rituxamab Infusion therapy.  Time will tell if it slows my lung loss down because I have very little left.  I am 71 years old.</p>