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Josie replied to the topic Old TB scars versus Chronic Hypersensitivity Pneumonitis in the forum Diagnosis Information and General Questions 2 years, 1 month ago
Thanks for your reply Sheila and Charlene. I’m sorry to hear you are having some struggles currently Sheila. Did your doctor feel that your fibrosis had anything to do with your TB? I am also finding this cold weather to be really challenging here in Canada; these temperatures make breathing very difficult outside, and I get a cough and a croaky…[Read more]
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Josie replied to the topic Coping with Winter in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 1 month ago
I am wondering if anyone has experienced sudden onset hoarseness when going out in the cold. I started getting a raspy voice in the fall, which they attributed to GERD. I’ve been on PPIs which seem to have really improved the acid reflux symptoms, but the voice problem has been getting much worse, and now very noticeably seems to be triggered by…[Read more]
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Josie replied to the topic Old TB scars versus Chronic Hypersensitivity Pneumonitis in the forum Diagnosis Information and General Questions 2 years, 1 month ago
Hi Charlene,
Thanks for your reply. I am waiting to get the date for my HRCT but they said it would be pretty soon, so I’m assuming sometime in the next few weeks. I’m quite anxious to get a more definitive answer, as to date, all I have is the two x-rays that apparently showed the upper lobe fibrosis so do not have a proper diagnosis yet. I will…[Read more]
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Josie replied to the topic Methacholine Testing in the forum Upcoming Medical Appointments: Q&As 2 years, 1 month ago
Hi Charlene,
My pulmonologist has ordered this test too, but in my case it’s to figure out if the shortness of breath might have another cause than the fibrosis. He said it was to rule out occult asthma. I haven’t had the test yet, but will let you know what happens when I do.
Interested to hear what you find too.
Josie
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Josie started the topic Old TB scars versus Chronic Hypersensitivity Pneumonitis in the forum Diagnosis Information and General Questions 2 years, 1 month ago
Hello
I hope folks are having a good day. I was wondering if anyone had a similar experience to what I’m currently navigating in terms of the diagnosis journey. They found upper lobe predominant fibrosis on two x-rays, and am now being scheduled for a CT scan and various other tests to confirm and look deeper. My Pulmonary Function tests were…[Read more]
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Josie changed their profile picture 2 years, 1 month ago
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Rene Hakkenberg and
Josie are now friends 2 years, 1 month ago
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Josie replied to the topic Indigestion & Acid Reflux in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 2 months ago
Hi Rene,
Thank you – I think, based on your advice, that I wasn’t using the wedge properly so will adjust it tonight. Yes, I think I need to improve overall conditioning, and now am very motivated to do so! (I’m 54 and really not interested in cutting my life short!!). That’s awesome that you’re connected to an IPF researcher and that there may…[Read more]
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Josie replied to the topic Indigestion & Acid Reflux in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 2 months ago
Good morning Rene and Charlene,
Thank you for all the great advice. I bought a wedge pillow for sleeping, which seems to help, and I bought an oximeter. So far my readings seem quite good, except my pulse is always a bit high. I’ve started on a daily regimen of strength training and aerobics, and am being careful to watch for 02 saturation as…[Read more]
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Josie replied to the topic Indigestion & Acid Reflux in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 2 months ago
Thank you so much Rene, Ray and Charlene for all the information. I hope you all had a lovely Christmas and are enjoying a relaxing Boxing day. Ray and Rene, I’m sorry to hear that efforts to alleviate the GERD have not been successful, and that surgery is not necessarily going to fix the problem. I’ve started sleeping a bit more upright, and…[Read more]
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Josie replied to the topic Indigestion & Acid Reflux in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 2 months ago
Hello
Interested to see this thread, as I was recently diagnosed with both PF and with GERD. I’m now being referred for a gastroscopy (after the ENT found acid damage to my vocal cords) so that they can take a look at my oesophagus, stomach and small intestine. It seems like there is an increasing amount of literature discussing the…[Read more]
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Josie posted a new activity comment 2 years, 2 months ago
Thank you Charlene. Just got the news yesterday that I apparently have this. Don’t know anything else really except that right now. No idea if it’s progressing or anything. It was found by accident, because I went into emergency for heart palpitations and they did a chest x-ray and said I have upper lobe fibrosis in both lungs. Had TB decades ago;…[Read more]
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Josie and
Charlene Marshall are now friends 2 years, 2 months ago
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Josie became a registered member 2 years, 2 months ago
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Thanks for joining the PF forums Josie. Welcome!
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Thank you Charlene. Just got the news yesterday that I apparently have this. Don’t know anything else really except that right now. No idea if it’s progressing or anything. It was found by accident, because I went into emergency for heart palpitations and they did a chest x-ray and said I have upper lobe fibrosis in both lungs. Had TB decades ago;…[Read more]
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