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Dianne

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@justanotherfish

It’s been 1 month today 4/18/18 since I had a total right hip replacement View
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    Dianne replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 4 years, 7 months ago

    Hi, I started Esbriet one month ago.  I had my first blood draw to check my liver.  I am having a lot of stomach acid and I don’t know if it the med or acid reflux.  I am currently scheduled to have endoscopy to check for GERD. The other symptoms are fatigue and burning of skin if exposed for more than 15 minutes.

    I was diagnosed with IPF in De…[Read more]

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    Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago

    Have faithfully taken CBD oil for weeks…..NOTHING CHANGED😣  Started CO, felt like something might work, tried various doses, still fairly new at it.  STILL HAVE CHRONIC PAIN.  Driving myself crazy trying to figure this amount dosage out.  I will continue  as in all fairness it has only been a few weeks.  Thanks, Dianne

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    Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago

    I still have not had any pain relief from CBD oil, but i spent alot of money on it, I will continue to take it because I believe it is beneficial for my body in other ways.

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    Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago

    So glad to read this.  I am 63 yrs old and am have cookies with mj, I take CBD 2 x a day.  Still working on dosage so only feel the benefit of pain relief but not stoned.  Have done a ot of research and opt for more natural, organic medicine than pharmaceuicals.  Thanks for sharing your experience.

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    Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago

    Hi Charlene, sorry I have not noticed any changes at all, with pain, sleep, or anxiety.  I will give it another week because it cost a ot of money.  I have taken a large dose to see if that made a difference, it didn’t.😣

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    Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago

    Hi All, it has been 5 days since I started using the CBD oil.  Honestly I have not noticed that much of a difference in pain.  I still am hanging on to the hope that I need to be on it at least 2 weeks more before I make my decision.  The other factor is getting the dosage correct which I am still working on.  Perhaps my expectations were too hig…[Read more]

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    Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago

    Hi All,

    Received my CBD oil today, trying to work out dosage, the company I purchased from that Chuck recommended Discover CBD oil is great to deal with and gladly answers all your questions.  I will keep you updated.

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    Dianne and Profile picture of Charlene MarshallCharlene Marshall are now friends 4 years, 11 months ago

  • Profile picture of Dianne

    Dianne and Profile picture of Chuck LandonChuck Landon are now friends 4 years, 11 months ago

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    Dianne replied to the topic PF Symptoms: Aching Joints and Muscles in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 11 months ago

    Dearest Charlene and Joyce, I have already had the hip replacement 1 month ago.  So it’s a number of issues causing me pain.  What a wonderful, encouraging, knowledgeble and supportive group you are.  I thank God I found you dear sister warriors.😊😗

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    Dianne replied to the topic PF Symptoms: Aching Joints and Muscles in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 11 months ago

    I was diagnosed with PF and emphzema 5 months ago.  Prior to that had been using a CPAP for apnea with very little troubles except for loud non-stop snoring.  My biggest challenge with over-all well being is chronic pain.  It is so frustrating to me to figure out what is causing the overall chronic pain and exhaustion.  I am on Cymbalta and Lyr…[Read more]

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    Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 11 months ago

    Dear Chuck and Charlene, Thank you.  Chuck I have gone ahead and ordered the exact same order as you.  I will update you at a later date as to how effective it was for me.  I so appreciate you sharing this information with me.  I have Pulmonary Fibrosis, Fibromyalgia and Osteo-Arthritis so pain relief would be such a blessing to me.  I am espe…[Read more]

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    Dianne replied to the topic PF Symptoms: Aching Joints and Muscles in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 11 months ago

    I am very interested in giving CBD oil for pain a try.  Is there a good quality brand I could purchase on-line?   Would someone PM me with a brand they are using with good results.  Thank you so much.

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    Dianne changed their profile picture 4 years, 11 months ago

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    Dianne posted an update 4 years, 11 months ago

    It’s been 1 month today 4/18/18 since I had a total right hip replacement

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 11 months ago

      Wow, thank you for sharing Dianne! I hope your recovery has gone well, and that you’ve found relief from this intervention 🙂

      Best,
      Charlene.

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    Dianne changed their profile picture 4 years, 11 months ago

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    Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 11 months ago

    May i ask how do you get CBD oil?  I am very interested in trying it for my fibromyalgia and osteo-arthritis pain.  Can this be purchased on-line?

    Thank you,

    Dianne

  • Profile picture of Dianne

    Dianne replied to the topic PF Symptoms: Aching Joints and Muscles in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 11 months ago

    Interesting, I also have fibromyalgia and osteo arthritis so it is extremely difficult to determine what is causing the pain.  Are there others that experience this as well?

  • Profile picture of Dianne

    Dianne replied to the topic Advice for Patients & Caregivers Newly Diagnosed in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 11 months ago

    I wish I were able to give advice but i am newly diagnosed 12/2017.  The question I have is what are the symptoms or side effects of PF other than SOB and the inevitable cough?  I am thrilled I found this site as I am just beginning to break my denial and reach out to others and gain knowledge about this disease.  Thank You.

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    Dianne became a registered member 4 years, 11 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 11 months ago

      Hi Dianne, welcome to the PF forums. Thanks for joining us!

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