@justanotherfish
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Dianne replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 4 years, 7 months ago
Hi, I started Esbriet one month ago. I had my first blood draw to check my liver. I am having a lot of stomach acid and I don’t know if it the med or acid reflux. I am currently scheduled to have endoscopy to check for GERD. The other symptoms are fatigue and burning of skin if exposed for more than 15 minutes.
I was diagnosed with IPF in De…[Read more]
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Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago
Have faithfully taken CBD oil for weeks…..NOTHING CHANGED😣 Started CO, felt like something might work, tried various doses, still fairly new at it. STILL HAVE CHRONIC PAIN. Driving myself crazy trying to figure this amount dosage out. I will continue as in all fairness it has only been a few weeks. Thanks, Dianne
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Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago
I still have not had any pain relief from CBD oil, but i spent alot of money on it, I will continue to take it because I believe it is beneficial for my body in other ways.
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Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago
So glad to read this. I am 63 yrs old and am have cookies with mj, I take CBD 2 x a day. Still working on dosage so only feel the benefit of pain relief but not stoned. Have done a ot of research and opt for more natural, organic medicine than pharmaceuicals. Thanks for sharing your experience.
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Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago
Hi Charlene, sorry I have not noticed any changes at all, with pain, sleep, or anxiety. I will give it another week because it cost a ot of money. I have taken a large dose to see if that made a difference, it didn’t.😣
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Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago
Hi All, it has been 5 days since I started using the CBD oil. Honestly I have not noticed that much of a difference in pain. I still am hanging on to the hope that I need to be on it at least 2 weeks more before I make my decision. The other factor is getting the dosage correct which I am still working on. Perhaps my expectations were too hig…[Read more]
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Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 10 months ago
Hi All,
Received my CBD oil today, trying to work out dosage, the company I purchased from that Chuck recommended Discover CBD oil is great to deal with and gladly answers all your questions. I will keep you updated.
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Dianne and
Charlene Marshall are now friends 4 years, 11 months ago
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Dianne and
Chuck Landon are now friends 4 years, 11 months ago
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Dianne replied to the topic PF Symptoms: Aching Joints and Muscles in the forum Diagnosis Information and General Questions 4 years, 11 months ago
Dearest Charlene and Joyce, I have already had the hip replacement 1 month ago. So it’s a number of issues causing me pain. What a wonderful, encouraging, knowledgeble and supportive group you are. I thank God I found you dear sister warriors.😊😗
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Dianne replied to the topic PF Symptoms: Aching Joints and Muscles in the forum Diagnosis Information and General Questions 4 years, 11 months ago
I was diagnosed with PF and emphzema 5 months ago. Prior to that had been using a CPAP for apnea with very little troubles except for loud non-stop snoring. My biggest challenge with over-all well being is chronic pain. It is so frustrating to me to figure out what is causing the overall chronic pain and exhaustion. I am on Cymbalta and Lyr…[Read more]
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Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 11 months ago
Dear Chuck and Charlene, Thank you. Chuck I have gone ahead and ordered the exact same order as you. I will update you at a later date as to how effective it was for me. I so appreciate you sharing this information with me. I have Pulmonary Fibrosis, Fibromyalgia and Osteo-Arthritis so pain relief would be such a blessing to me. I am espe…[Read more]
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Dianne replied to the topic PF Symptoms: Aching Joints and Muscles in the forum Diagnosis Information and General Questions 4 years, 11 months ago
I am very interested in giving CBD oil for pain a try. Is there a good quality brand I could purchase on-line? Would someone PM me with a brand they are using with good results. Thank you so much.
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Dianne changed their profile picture 4 years, 11 months ago
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Dianne posted an update 4 years, 11 months ago
It’s been 1 month today 4/18/18 since I had a total right hip replacement
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Dianne changed their profile picture 4 years, 11 months ago
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Dianne replied to the topic Using CBD Oil For IPF in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 11 months ago
May i ask how do you get CBD oil? I am very interested in trying it for my fibromyalgia and osteo-arthritis pain. Can this be purchased on-line?
Thank you,
Dianne
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Dianne replied to the topic PF Symptoms: Aching Joints and Muscles in the forum Diagnosis Information and General Questions 4 years, 11 months ago
Interesting, I also have fibromyalgia and osteo arthritis so it is extremely difficult to determine what is causing the pain. Are there others that experience this as well?
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Dianne replied to the topic Advice for Patients & Caregivers Newly Diagnosed in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 11 months ago
I wish I were able to give advice but i am newly diagnosed 12/2017. The question I have is what are the symptoms or side effects of PF other than SOB and the inevitable cough? I am thrilled I found this site as I am just beginning to break my denial and reach out to others and gain knowledge about this disease. Thank You.
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Dianne became a registered member 4 years, 11 months ago