-
Karen Larson Gonsler replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis Information and General Questions 2 years, 8 months ago
Hi Charlene,
I was diagnosed with PF in February 2017. I have been on prednisone ever since.First I was on just prednisone then a combo of prednisone and Cell Cept. I had a bad reaction from the Cell Cept so stopped taking it after 6 mos. I started prednisone at 40 mg daily and dropped to 20 in the first 6 months. After dropping the Cell Ce…[Read more]
-
Karen Larson Gonsler replied to the topic The Awkwardness of Wearing A Mask In Public in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 2 months ago
I know exactly how you feel. Everyone walk away from me as if I’m going to contaminate them. It’s something I have struggled with too. I’m finally realizing it’s ok. I’m doing this for me. I wonder if we should right on the mask itself that we’re just protecting ourselves& not contagious. 😊
-
Karen Larson Gonsler replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 8 months ago
Charlene, thank you so much for the tip on wearing the cannula backwards. This is fantastic. It holds it in place and keeps my hands off it. I just need to get used to it. Thanks again. Your topics are always so helpful. This disease is no fun, but if we face it together and help each other deal with our problems it makes each day A bit easier.…[Read more]
-
Karen Larson Gonsler replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 8 months ago
I am on oxygen 24/7. I use a home concentrator, an eclipse 5 & bottles of O2. I change mine every week or 2. My supplier will give me as many as I want. I change each one as they get dirty quickly. I’m constantly playing with it as I can’t seem to find one that fits me right. The best for me is the Salter Lab super soft. The nose pieces are eithe…[Read more]
-
Karen Larson Gonsler replied to the topic Dealing with laughter (yes, you read that correctly.) in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 9 months ago
I also cough a lot while laughing. I wish I knew how to deal with this. I love to laugh and it’s an uplifting feeling to do so. If anyone out there knows a solution let us know.
-
Karen Larson Gonsler and
Charlene Marshall are now friends 3 years, 10 months ago
-
Karen Larson Gonsler replied to the topic Swelling in the Legs & Feet: A Symptom of IPF? in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 10 months ago
Charlene, my pulmonologist told me to keep my feet elevated as much as possible. He wants me to watch for redness or extreme swelling that doesn’t go down when elevated and get back with him if it doesn’t subside in a few days. Of course he mentioned “salt” intake which I assured him I’m always careful with. He did say to try light compressi…[Read more]
-
Karen Larson Gonsler replied to the topic Swelling in the Legs & Feet: A Symptom of IPF? in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 10 months ago
I have PF and I have this going on right now. It’s happened before but usually goes away after a day or two. This time it’s lasting longer. It’s been more than two weeks now. Mainly in my right ankle, but also present less severely in the left ankle. It’s always better in the morning but soon gets swollen after I’m up and about. Sending…[Read more]
-
Karen Larson Gonsler replied to the topic Songs That Resonate For You as a Patient with Pulmonary Fibrosis. in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 9 months ago
I love the song Great are you a Lord by Sons and Daughters. Here are a few of the lyrics:
You give life, You are love
You bring light to the darkness
You give hope, You restore
Every heart that is broken
Great are You, Lord
It’s Your breath in our lungs
So we pour out our praise
We pour out our praise
It’s Your breath in our lungs
So we pour out…[Read more] -
Karen Larson Gonsler's profile was updated 4 years, 9 months ago
-
Karen Larson Gonsler became a registered member 4 years, 9 months ago