Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Karen Larson Gonsler

Home Members Karen Larson Gonsler
show less show more
Profile picture of Karen Larson Gonsler

@karen-larson-gonsler

  • Activity
  • Profile
  • Friends 1
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 10 months ago

    Hi Charlene,

    I was diagnosed with PF in February  2017. I have been on prednisone ever since.First  I was on just prednisone then a combo of prednisone and Cell Cept. I had a  bad reaction from the Cell Cept so stopped taking it after 6 mos. I started prednisone at 40 mg daily and dropped to 20 in the first 6 months. After dropping the Cell Ce…[Read more]

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler replied to the topic The Awkwardness of Wearing A Mask In Public in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 4 months ago

    I know exactly how you feel. Everyone walk away from me as if I’m going to contaminate them. It’s something I have struggled with too. I’m finally realizing it’s ok. I’m doing this for me. I wonder if we should right on the mask itself that we’re just protecting ourselves& not contagious. 😊

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 10 months ago

    Charlene, thank you so much for the tip on wearing the cannula backwards. This is fantastic. It holds it in place and keeps my hands off it. I just need to get used to it. Thanks again. Your topics are always so helpful. This disease is no fun, but if we face it together and help each other deal with our problems it makes each day A bit easier.…[Read more]

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 10 months ago

    I am on oxygen 24/7. I use a home concentrator, an eclipse 5 & bottles of O2. I change mine every week or 2. My supplier will give me as many as I want. I change each one as they get dirty quickly. I’m constantly playing with it as I can’t  seem to find one that fits me right. The best for me is the Salter Lab super soft. The nose pieces are eithe…[Read more]

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler replied to the topic Dealing with laughter (yes, you read that correctly.) in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 11 months ago

    I also cough a lot while laughing. I wish I knew how to deal with this. I love to laugh and it’s an uplifting feeling to do so. If anyone out there knows a solution let us know.

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler and Profile picture of Charlene MarshallCharlene Marshall are now friends 2 years, 11 months ago

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler replied to the topic Swelling in the Legs & Feet: A Symptom of IPF? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 11 months ago

    Charlene, my pulmonologist told me to keep my feet elevated as much as possible. He wants me to watch for redness or extreme swelling that doesn’t go down when elevated and get back with him if it doesn’t subside in a few days. Of course he mentioned “salt” intake which I assured him I’m always careful with. He did say to try light compressi…[Read more]

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler replied to the topic Swelling in the Legs & Feet: A Symptom of IPF? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 12 months ago

    I have PF and I have this going on right now. It’s happened before but usually goes away after a day or two. This time it’s lasting longer. It’s been more than two weeks now. Mainly in my right ankle, but also present less severely in the left ankle. It’s always better in the morning but soon gets swollen after I’m up and about.  Sending…[Read more]

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler replied to the topic Songs That Resonate For You as a Patient with Pulmonary Fibrosis. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 11 months ago

    I love the song Great are you a Lord by Sons and Daughters. Here are a few of the lyrics:

    You give life, You are love
    You bring light to the darkness
    You give hope, You restore
    Every heart that is broken
    Great are You, Lord
    It’s Your breath in our lungs
    So we pour out our praise
    We pour out our praise
    It’s Your breath in our lungs
    So we pour out…[Read more]

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler's profile was updated 3 years, 11 months ago

  • Profile picture of Karen Larson Gonsler

    Karen Larson Gonsler became a registered member 3 years, 11 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 11 months ago

      Hi Karen, thanks for joining the PF forums and welcome!

Profile Photo Thomas Mooney Profile Photo Mary Jo Drake

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Search in posts
Search in pages

Who’s Online

Profile picture of Pat

Newest Topics

  • Using Social Media for Advocacy by Christie Patient
  • Generic Version of Esbriet Available in the US. by Charlene Marshall
  • Mental Health & Chronic Illness Advice by Charlene Marshall
  • When should you start antifibrotics? by Darcy
  • Need to start all over by Rebecca Schrantz-Lilly

Recent Replies

  • Breathing techniques to help reduce IPF-related stress
  • IPF patient symptoms
  • Need to start all over
  • IPF patient symptoms
  • IPF patient symptoms

Members

Newest | Active | Popular
  • Profile picture of Pat
    Pat
    Active 9 minutes ago
  • Profile picture of Upali Samarakoon
    Upali Samarakoon
    Active 21 minutes ago
  • Profile picture of Chris Montgomery
    Chris Montgomery
    Active 1 hour, 15 minutes ago
  • Profile picture of Kevin Schaefer
    Kevin Schaefer
    Active 1 hour, 26 minutes ago
  • Profile picture of Colin O Driscoll
    Colin O Driscoll
    Active 1 hour, 40 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account